Hi my 4 year old daughter has been diagnosed with Actinic Prurigo. The hospital have given me information on this if you can call it that one A4 sheet of paper. I am desperate for more information or meeting others with the same condition. I have tried looking on the net for support groups but there don't seem to be any. I thought there was somewhere that did holidays for children like this so they get to meet others with the same condition but maybe i am wrong.
Any information will be welcome.