| | Re: 2 1/2 year old granddaughter has symptoms of Periodic fever syndrome
Hi, I was just wondering if they have run SED rate tests and CRP tests. ALso, are her neutrophils or platelets elevated? Does she have a rash? THere are 8 known periodic fever syndromes and several more they are trying to identify fully. They all have different symptoms. THey are still trying to figure out which one my son has, they think he actually has two genetic mutations on different genes, causing two syndromes and that's why they cannot seem to pinpoint which one he has. DONT GIVE UP, it's frustrating and awful, we've been trying to figure this out since he was 15 months, but his symptoms started around 30 days old, he's now 4 1/2. good luck.