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Does anyone have Branchio Oto syndrome?

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Old 02-06-2008, 02:59 PM   #1
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Join Date: Mar 2007
Location: England
Posts: 24
wendy2468 HB User
Lightbulb Does anyone have Branchio Oto syndrome?

I have a family history of this, not the renal problems just the deafness, cysts and ear pits. Does anyone here suffer from this syndrome also. Its very hard to get any up to date information on this. I know there is nothing can be done about it, but would love to hear from other peoples experience of it and family history. I can trace this back to my great grand mother all the way down to my youngest son.

Thanks for your time.

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