Re: PFAPA -what?
My son suffered from chronic fever (FUO) as high as 104 and each time the doctors would run strep test, then send us home with some antibiotic "just in case", with no explanation. After 5 months of recurring fevers (every 5 weeks like clockwork), I got online and found this forum.
I was shocked at how my son exhibited all of the symptoms listed for PFAPA. Since he's been old enough to speak, he's had frequent headaches as well, at least two a week requiring ibuprofen or acetaminophen to comfort him. I called his PCP and the ENT we had scheduled an appointment with, and to my surprise, they hadn't heard of it.
The ENT that saw my son, immediately recommended a tonsillectomy, citing the lesions/infection on his tonsils, which surprised me as I figured I would have to twist his arm for tonsil removal.
His tonsils came out April 12th, and he hasn't has a head ache, sore throat, or fever since (knock on wood). He's much healthier, and quicker to recover from a hard day of playing.
The recommendations for a tonsillectomy as a cure for PFAPA were right on in our case, and I'm very happy with this decision we made for our son.