It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Rare Disorders Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 07-18-2008, 03:55 PM   #1
Senior Veteran
Join Date: Mar 2008
Location: CA, USA
Posts: 576
Wallis86 HB User
Mitochondrial disease

Is there anyone suffering from mitochondrial diseases? My doctor just tested me for them, thinking I have MNGIE (Mitochondrial neurogastrointestinal encephalopathy syndrome). I have progressive severe spasticity, spasming convulsions, drooping eyelids, eye pain, ulcerative colitis, twisting limbs, severe fatigue, and severe hypoglycemia that may be due to slow onset type 1 diabetes. Just looking for some insight.

Sponsors Lightbulb
Old 07-22-2008, 10:45 AM   #2
Senior Veteran
Join Date: Mar 2008
Location: CA, USA
Posts: 576
Wallis86 HB User
Re: Mitochondrial disease

Thanks so much! I don't eat too high sugar meals any how because of the blood sugar issues. I'm just waiting it out until this become full blown T1 diabetes before I don't really have to diet control. Thanks for the heads up though, I'll definitely be aware of LA buildup. I'm going to check out that website too. Do you have mito?

Sponsors Lightbulb
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Chronic fatigue could be Mitochondrial disease Makzim68 Chronic Fatigue 28 05-28-2009 11:53 PM
how to solve mitochondrial disease hitesh999 Chronic Fatigue 0 12-23-2008 04:04 AM
mitochondrial disease Wallis86 Neuromuscular Diseases 9 08-25-2008 03:12 PM
Janet's update - Mitochondrial Function? janetclarkson Lyme Disease 35 06-30-2007 07:34 PM
CFS/ME as Mitochondrial Dysfunction Maenad Chronic Fatigue 11 05-30-2007 09:05 AM

Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 05:10 AM.

Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2015 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!