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Old 08-05-2008, 08:16 AM   #1
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Join Date: Aug 2008
Location: Fairfield, NJ
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tgioiello HB User
physician who treat ttp

Looking for anyone that has seen/treated a child with TTP from E-coli. My nephew is 3.11 years old. He is diagnosed with E-coli HUS & TTP. He has had 2 strokes and his brain is swelling. The current neurologist's findings show no brain activity, but there has been voluntary and involuntary moment with the child's toes and feet. The current treatment plan is PD (pertoneal dialysis) and plasmapheresis and steroids for blood improvement and blood pressure medication to stabilize the blood pressure. The doctors currently caring for my nephew have experience with the HUS diagnosis, but have not seen a child of this age with the TTP combination. Is there anyone who may know of other treatments or outcomes that can HELP? --please contact me by email at either address: [email]{REMOVED}[/email]

Last edited by ms_mod; 08-05-2008 at 09:53 AM. Reason: Do not post off board contact information of any kind for any reason. Ms_Mod

 
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