Originally Posted by Pottsey1
Hi! I'm 60 and diagnosed with polycythemia in 2000. I have been on hydroxurea (500 mg) and and agrylin (1 mg) and an 81 mg aspirin. I mention Interferon to my hematologist last year and he said I didn't want anything to do with that. He said the meds he has me on is the best tretament available.
Best of Luck;
Thanks for writing Randy,
My hemotologist said the same thing to me 21 years ago (stay away from Intron) but because I was so young the hydroxurea, etc. were not recommended just phebotomies. As you probably know the results of hydroxea consistently shows the eventuality of leukemia which I guess I finally have gotten any way.
If I had developed this later in life perhaps - like now - that's the route I would have taken. They may even put me on it now, I don't know. The Intron was tough to start with, but really not that bad over time. Check out Dr. Richard T. Silver's information on line. He did the interferon experiments, and it was his study I was included in. After so many years of injections I tied of the process.
Thanks for responding. Do you have family members with this? I found one cousin who would have been 107 by now if he were alive. He died of a heart attack, which I presume was caused by the polycythemia.