Originally Posted by curlzz31
I have a 2.5 year old girl who has been having these extremely high fevers every 2-4 weeks for many months now (seems like she would be a textbook case of PFAPA based on her symptoms). Just wondering when it appropriate to push for answers other than "it's just viral" ...How long did everyone wait before seeking out a diagnosis?
I was seeing one Ped. and then got lucky and saw a different one in the practice. I kept dragging my ill son in and told them that something was really wrong. You need to use words like recurrent & episodic. I got a referral to the ENT specialist who actually diagnosed my son, not the ped. but the Ped was on board that something was not right. He said my son had recurrent tonsilitis. My specialist told me not to be mad at the ped bacause they just are not trained to look for PFAPA, just tonsils.
I wish you luck and I hope someone listens to you.