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Old 02-10-2009, 12:19 PM   #1
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Lack of B12 causing pain??

Has anyone else had low B12 and joint pain?I have shingles, low B12 and low iron/ferritin. I can't even move my arms in the morning. When I roll over in my sleep it wakes me up out of a deep sleep!

Last edited by mysixpack; 02-10-2009 at 12:20 PM. Reason: It wasn't worded right

 
Old 02-11-2009, 07:31 AM   #2
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Re: Lack of B12 causing pain??

My doctor is going to do a nerve test on my arms to make sure there isn't something else going on. The problem is I have a spot on my spine and my knee hurts. He said it could also be Fibromyalgia. I still think it's the B12. I know that this time last year I was low too.

 
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Old 02-11-2009, 09:29 AM   #3
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Re: Lack of B12 causing pain??

I don't think it's the b12...low b12 levels/low ferritin are symptoms of something else gone amok. If your doctors rule everything out, you may want to consider ruling out Lyme disease which is often referred to as The Great Imitator because it mimics conditions like Fibro, arthritis (joint problems, in particular knee are listed as stage 2 lyme disease symptoms),MS, ALS, anemia, etc.

Specialists are needed to diagnose Lyme...reg docs don't have the know how.

Last edited by bethsheba; 02-11-2009 at 09:30 AM.

 
Old 02-11-2009, 10:49 AM   #4
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Re: Lack of B12 causing pain??

Quote:
Originally Posted by bethsheba View Post
I don't think it's the b12...low b12 levels/low ferritin are symptoms of something else gone amok. If your doctors rule everything out, you may want to consider ruling out Lyme disease which is often referred to as The Great Imitator because it mimics conditions like Fibro, arthritis (joint problems, in particular knee are listed as stage 2 lyme disease symptoms),MS, ALS, anemia, etc.

Specialists are needed to diagnose Lyme...reg docs don't have the know how.
I live in Southern California. We do have a creek going through our backyard. We have 3 dogs-4 cats. I know we've had a really hard time with fleas this year-more then in the past. My husband hunts-but I don't go. I just wash his clothes after he is done. I thought you had to have a noticeable red rash surrounding a bite.
Another symptom that I have is low grade fevers. It goes up and down during the day. I've tried Lyrica and neurontin-Both caused severe dizziness and one caused blurred vision. Not worth it! Now the doctor wants me to try Cymbalta.
How long does Lyme Disease last? They are testing my B12 again and some other things to see if I'm absorbing it. I can tell you I'm not starving-I also gained 30 pounds in three months. With no diet changes and I was still active.
This is such a long process-on top of this I've had shingles for a few months now.

 
Old 02-11-2009, 03:21 PM   #5
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Re: Lack of B12 causing pain??

My...,

Although 5 different types of ticks carry the disease, some suspect fleas, flies, and other insects may carry it as well. The fact that your husband hunts compounds the problem...but FYI, I worked with 3 professional women who were strictly city people (manicured nails, the works!) and they got lyme (they did have trees on their lots).

Although a bullseye rash is a definitive symptom of the disease, most people (less than 1/2) don't remember seeing a rash...nor do they remember ticks or nits (which can be as small as the period at the end of this sentence)biting them.

Anemia, low grade fevers, severe dizziness, and blurred vision are also symptoms of lyme (these can also be symptoms of med side effects). Symptoms vary alot depending on the kind of infection (lyme is one thing but often other infections occur with it), the length of the infection, the types of treatments that had been prescribed for the conditon, etc. Weight gain is also a symptom (and ironically, so is weight loss). The shingles doesn't surprise me one bit as your body is fighting many things at one time and your immune system can't keep up!

How long does Lyme last? I don't know that we know the answer to that question....some people recover on their own, some suffer chronic, deabilitating symptoms all their life, and some people die. It depends on how soon the infection is recognized and treated, it depends on the body's immune system (BEWARE, steroids can compromise the immune system and make the infection worse) and some think there may be a genetic factor in combating the disease....in other words, we know so very little!

Just a note antibiotic treatment may "seem" to make the condition worse (herxheimer reaction) but that reaction means the antibiotic is working.

If I were in your shoes, I'd avoid steroids like the plague until your docs know what is going on...

Last but not least, Lyme Literate Medical Doctors, are the specialists many Lymies recommend consulting with...too many have wasted valuable time and money with docs who worked with outdated or misleading diagnostic tools.

Good luck....

Bethsheba

PS I can't emphasize enough how important it is to look PAST the anemia issue. Although it is an IMPORTANT issue, the cause of the anemia is MORE IMPORTANT....sorry about shouting.

Last edited by bethsheba; 02-11-2009 at 03:32 PM.

 
Old 02-11-2009, 03:44 PM   #6
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Re: Lack of B12 causing pain??

I was always told that we don't have the ticks here in California that cause that. My daughter had debilitating pain last fall had a rash itched all over and had a fever. She had been stung by bees and fleas love her. When I suggested Lyme they laughed in my face. They didn't find cancer and they did do a Lyme test(per my request) and it came out negative. The ended up saying it was JRA. What a nightmare-now I have my own nightmare!
I should mention that when all this started I was not on any medications at all-just vitamins.
What do you take for the pain? Is there anything that helps-I feel like I'm dying!

 
Old 02-11-2009, 05:10 PM   #7
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Re: Lack of B12 causing pain??

Quote:
Originally Posted by mysixpack View Post
I was always told that we don't have the ticks here in California that cause that.
If a medical professional told you that, I would sue.....documented cases of Lyme occur in every state in this union, and in other countries around the world. Board rules limit links that I can post but the following link may start you in the right direction:

[url]http://ww2.cdph.ca.gov/HealthInfo/discond/Pages/LymeDisease.aspx[/url]

I've found that govt links often contain outdated info...I've found links to local Lyme associations to be very, very good...actually, a Lyme association in Ca had info that I wasn't aware of despite knowing about the disease for over 30 years (it was discovered in our state).

Quote:
... My daughter had debilitating pain last fall had a rash itched all over and had a fever.
Based on what I've read, these symptoms suggest Lyme needs to be ruled out in her case!! and a Lyme Literate Doctor is the specialist to rule it out. Many Lymies suggested they've wasted too much time and money with docs who didn't know what they were doing! and that a LLMD should be consulted as soon as other condtions have been ruled out or lyme is suspected.

Quote:
When I suggested Lyme they laughed in my face. They didn't find cancer and they did do a Lyme test(per my request) and it came out negative...
Did they do an elisa? or did they do a western blot and send it out to Igenex Labs? Since they laughed in your face and you were the one to request the testing, I would be willing to bet they didn't know how to diagnose/test Lyme!!! Diagnosis is extremely difficult and for that reason the international lyme specialists recommend that treatment be based on symptoms, not on tests (which is similar to how conditions are treated in the mental health field, which like Lyme disease, lacks credible testing methods).

Although I have had excruciating pain, it was due to the side effects of blood pressure medication (I learned after the fact and despite the denials of my doctors). Pain medication did nothing...one poster was told by her pain mgmt doc that nerve pain doesn't respond to pain meds, so I'm assuming some of the pain I was experiencing was nerve pain.

I don't have Lyme's...but except for the rashes, I think it's safe to say I've experienced most of the symptoms...

Bethsheba

Igenex Labs in California (hmmmm, what a coincidence) is one of 2 of the best laboratories in north america that tests for lyme....like prescription medications, laboratory tests can be patented, so not every lab can legally perform every test. The test that most doctors use, the Elisa, is quick and relatively inexpensive BUT it is so unreliable that many have appealled to have it banned.

Take care....and chin up. It will get better because you are smart and you are thinking and questioning!!

My thoughts and prayers are with you and your family.

Bethsheba

Last edited by bethsheba; 02-11-2009 at 05:36 PM.

 
Old 02-12-2009, 06:04 AM   #8
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Re: Lack of B12 causing pain??

I know not to trust the doctors. I went through hell and back with my daughter. She is only 7(6 at the time) and the suggested(on many occasions)that it was all in her head. Being that I've had six kids and many doctors visits-I've heard that comment as well. I just can't believe they could say that about a little girl. I must admit it made me fight harder. If you compared her pain to it being in her head she would have to be mentally ill to stay up all night screaming in pain. There was no faking it. I even had her evaluated to clear her. They still poo pood her pain. I felt bad that she had to see that some doctors just dont care. She want to grow up and be an OBGYN and I told her she can change that outlook with her own patients one day.
Well, my Neurologist(who I like) gave me a sample of Cymbalta. I knew it was going to come to that when his Lyrica didn't work for me. Everything that is "suppose" to work doesn't. Does Lyme cause loss of mobility on one side of your body? Or vision loss. I had an episode last year at this time. It struck me out of no where. I woke up with a really bad headache and loss of vision in one eye. Then I slowly loss mobility. After a couple months it all came back and then this all started. They said that was vit. B12 too.

 
Old 02-12-2009, 08:24 AM   #9
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Re: Lack of B12 causing pain??

Quote:
Originally Posted by mysixpack View Post
I know not to trust the doctors. I went through hell and back with my daughter. She is only 7(6 at the time) and the suggested(on many occasions)that it was all in her head. Being that I've had six kids and many doctors visits-I've heard that comment as well. I just can't believe they could say that about a little girl. I must admit it made me fight harder. If you compared her pain to it being in her head she would have to be mentally ill to stay up all night screaming in pain. There was no faking it....
I am so very angry reading this, so very angry...and she is so very lucky to have you fighting for her.

Quote:
... Does Lyme cause loss of mobility on one side of your body? Or vision loss. I had an episode last year at this time. It struck me out of no where. I woke up with a really bad headache and loss of vision in one eye. Then I slowly loss mobility....
Yes, to all of the above. And vit b12 deficiencies as well as iron issues are symptoms, too. Unfortunately, many people get bogged down with symptoms and don't take into account the whole picture...you don't sound like the kind of person to do that.

Just got a call from my new vet...my last vet diagnosed my cat with kidney disease (I suspected diabetes, and perhaps thyroid) but we've been treating her for kidney disease...new vet says kidneys are fine but blood sugar is high and she's got borderline thyroid issues...seems like our docs are not the only docs who just don't have a clue!!! Unfortunately, I didn't apply my mantra of don't believe anyone, until you check out yourself first...and my dear little kitty was the one who paid the price (and I was the one who paid for treatment she didn't need).

Am going away for a little while...hope you do some reading on the Lyme boards...take care and god bless you and those little ones that you protect and care for,

Bethsheba

 
Old 02-12-2009, 09:19 AM   #10
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Re: Lack of B12 causing pain??

Thank you-I will look into it.

 
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