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Old 03-23-2009, 08:04 PM   #1
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cerse HB User
Anyone suffering from Vocal/Voice issues and/or Nerve pain????

Simply put, I had an inexplicable episode 2 years ago which resulted in a recent diagnosis of bilateral vocal paresis and post viral vagal neuropathy. In short, I suffer from chronic voice pain any time I try to speak above a moderate level. The sharp pain is defined as odynophonia, but otherwise you'd have no idea that I suffer from anything.

Before I detail my whole story, I'm curious if anyone has experienced anything like this in any variety. I've already seen the world's best specialists and we've toyed with numerous nerve drugs, each ultimately with no success.

If there is a more appropriate place to post this message, your insight would also be appreciated.

Best,

Cory

 
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Old 04-03-2009, 10:25 AM   #2
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Re: Anyone suffering from Vocal/Voice issues and/or Nerve pain????

I had something similar, but not the same. I developed vocal chord nodules on my chords that hurt so bad even to talk. I had them lasered off. However, prior to having that done, it hurt so bad to talk it was crazy. I don't know about nerve involvement. I just didn't want you to be ignored.
Best, Julie

 
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Old 04-04-2009, 10:31 AM   #3
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Re: Anyone suffering from Vocal/Voice issues and/or Nerve pain????

Thanks for the response. Sadly, I've extremely familiar with all throat and voice conditions after visiting literally every renowned specialist in the country. Currently, I am seeing the top voice doctor in the world. It's a peculiar situation as I literally just woke up one morning without a voice and striking pain. After a year and a half journey I have some answers but in the end, nobody knows why it happened, nobody can give me a precise diagnosis, and nobody knows exactly how to treat it. I've tampered with a variety of nerve medications but none have done the trick. Interestingly enough, if we spoke, you'd have no idea anything was wrong, as I sound fine. The only symptom is odynophonia, or my experience with sharp pain when I speak above a moderate level. I'm now in that risky area where I'm considering unconventional methods like acupuncture. Desperation can be a dangerous thing, so I'm proceeding with caution.

Out of curiosity, are you fine now? I've known people to have nodules removed only to have them come back.

Last edited by cerse; 04-04-2009 at 10:31 AM.

 
Old 04-06-2009, 10:13 AM   #4
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JewelryJulie HB User
Re: Anyone suffering from Vocal/Voice issues and/or Nerve pain????

My nodules were brought on due to singing. I stopped singing, and they have stayed away. It was my love, and one more depressing thing I have dealt with (I have a lot of health problems.) I had that done almost 20 yrs ago and am ok now.

In retrospect, I think that my problem was not breathing properly. I have asthma which went undiagnosed forever. I also have tietze's syndrome-which is rib pain and swelling, so both caused me to not be able to support my voice-leading to "singing on the chords."

Best wishes,
Julie

 
Old 04-07-2009, 10:28 AM   #5
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Re: Anyone suffering from Vocal/Voice issues and/or Nerve pain????

What sort of medications do you take for your Asthma? A number of them have a strong connection and negative association with voice and throat problems.

 
Old 04-10-2009, 09:20 AM   #6
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Re: Anyone suffering from Vocal/Voice issues and/or Nerve pain????

Quote:
Originally Posted by cerse View Post
What sort of medications do you take for your Asthma? A number of them have a strong connection and negative association with voice and throat problems.
I wasn't taking asthma meds when I had this problem. My voice is fine now and has been for nearly 20 yrs. I was just giving support to the OP. Thanks for the info, however.

 
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