My son has just been diagnosed with PFAPA. I have done a lot of research and I'm 100% convinced this is the proper diagnosis. The problem is we have seen 4 different doctors with 4 different takes on this illness. I really need a referral from someone who has a good doctor and knows about this illness. I would like an ENT as we are looking into a tonsillectomy.
I am sorry I dont have a Dr referral for you, but just wanted to let you know I made the same choice as you for T&A surgery. I know it is scary and it is not an easy recovery but it is worth it. My daughter has been fever free for 1 yr this month thanks to the surgery. Good luck and keep us posted.