Hey everyone. Im 19 years old just about to turn 20 and Ive been diagnosed with PFAPA (Periodic fever, aphthous stomatitis, pharyngitis and adenitis). This has been going on since about 7th grade, when I was 12. We didnt have any idea until a doctor at our Urgent care office brought up the idea. Ive been getting prescribed Prednisone but I really hate the idea of taking that every 6 weeks. I notice my sickness appears more often once Im under heavy loads, stress, 50+ hours at work, ect. Ive called my local infectious disease center and they said they would get back to me but probably cant do much about it since its a genetic/hereditary syndrome.
Is there any other drug out there that people know of that works on a consistant basis? I know long doses of prednisone can result in catarax, bone issues, athritis, and much much more.
Im getting tired of being sick so often and Ive been told I should out grow this eventually, but Im getting my *** kicked all the time by this.
Who out there can help!? Also, are there any specialist out there for this?