There is a lot of information about various types of dystonia online. I just found one myself a few days ago. Type dystonia on a Google search engine and go from there. There is the Dystonia foundation, a Dystonia research foundation, and more. Already I have been mailed a package of free dvds and videos and books about it from Georgetown University! And I live in Minnesota. The message boards are great because you can talk to many people with the same types of dystonia, compare treatments, meds, and encourage. God Bless, and Good Luck!
DeVonna