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Old 10-04-2002, 01:14 PM   #1
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Post anyone ever had/have gastro perisis (sp ?)

Just wondering if anyone has ever had/have gastro perisis (i know that's not spelled right). It is when your stomach is paralyzed. I had it for about 6 years of my life. It started when i was about 10 years old. I was nauseated all the time and i couldn't throw up. After many doctors telling my mother that it must be in my head, i finally went to a doctor that did some tests and found out what it was. My stomach was paralyzed and i could not throw up because of this, and my food took 18 hours (the normal is 3 hours) to digest. Thus, it sat in my stomach and rotted making me very sick..
Just wondering if there was anyone out there that knows about this. I somehow got this very rare problem
from epstein bar (which causes mono in most people, but in my case this horrific problem).
Just wondering :-)
Alison

 
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Old 10-07-2002, 10:45 PM   #2
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Hi Alison -
I saw your post before, but just now realize you mean gastroparesis...sorry I didn't pick up on it before.

I don't know a lot about it, but it is not uncommon for people who have diabetes to develop gastroparesis. You may want to go to the American Diabetes Association's web site, [url="http://www.diabetes.org,"]www.diabetes.org,[/url] and check in their archives for articles about gastroparesis. They'll talk a lot about the difficulty of regulating blood sugar with GP, but you can ignore that part of it. I believe they had some articles regarding treatments.

And, of course, do a net search on google or another search engine. The spelling you want is: gastroparesis.

I do know that GP is a miserable condition, and I'm so sorry you have to contend with this. Good luck in your search for info and treatments.

Ruth

 
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Old 10-08-2002, 10:42 AM   #3
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Thanks for your reply. I do not have the disease anymore. The Lord healed me from it and my stomach works perfectly fine now. (throwing up and all :-) )
But, thanks, i will look up that info. It was a very hard thing to have, and i am so blessed to have my life back again.
Thanks again
Alison :-)

 
Old 01-26-2007, 05:28 PM   #4
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Re: anyone ever had/have gastro perisis (sp ?)

I have been diagnosed with gastroparesis. I have had symptoms for over two years and they get progressively worse. It took two years to find a doctor to even diagnose me. Previously I was incorrectly diagnosed with various disorders such as Acid Reflux, IBS, and Psychological Disorders. I love how doctors claim that you have a psychological disorder just because they are too incompetent to diagnose a condition. The worse part of it is that I have a classic case of gastroparesis, so as long as the doctor had ever heard of the condition their would be no question about the diagnosis!

My current Doc has me on Zelnorm and Prilosec. While these drugs are for IBS and Acid Reflux they do help a little. Mostly I beleive that they are treating symptoms and not the cause. However, since no one seems to know what causes this condition or how to cure it, I guess that is the best I can expect. Hey, never being able to drink anything but water and never being able to eat in public for the rest of your life isn't that bad, right?

 
Old 02-27-2007, 03:48 PM   #5
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Re: anyone ever had/have gastro perisis (sp ?)

I have been diagnosed with gastro parysis as well. It took years for me to be diagnosed. I was feeling sick for years and my doctor said it was in my head, stress, or post-nasal drip that caused it. I finally conned my way into a specialist because no one believed me. He scoped my stomach and he determined I not only had gastro parysis, but ulcers in my esophogus and Barett's Esophogus, which is a precancerous condition caused by years of digestive abuse (bad acid reflux). Gastro parysis can be caused by many things, diabetes and it can be a genetic condition passed through females. I happen to have that genetic condition and now so does my sister. If you have this genetic condition your stomach will turn on and off. You said in a later posting that your stomach works now, but it wont necessarily always work so get it checked on every once in awhile.

 
Old 07-05-2007, 09:47 AM   #6
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Re: anyone ever had/have gastro perisis (sp ?)

Find a Gastroenterologist who is experienced at injecting botox into the stomach during an endoscopy. It isn't a long lasting therapy but works for some when reglan and other meds don't work any more.

 
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