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Old 07-18-2003, 02:15 PM   #1
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Post cold eurticaria

i was wondering if anyone else had this disease and if they have found any information on it...

 
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Old 07-19-2003, 02:27 AM   #2
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Hi booger-
I believe you are talking about cold urticaria.

I personally don't have it but I've heard a bit about it.
Basically urticaria is another word for HIVES. (itchy or painful raised welts or wheals on the skin)

Cold urticaria occurs in two forms. The rare form is hereditary (anyone else in your family have it?) and you get hives all over your body 9 to 18 hours after cold exposure. The more common form of cold urticaria happens quickly with the rapid onset of hives on the face, neck, or hands after exposure to cold.

Cold urticaria is common and lasts for an average of 5 to 6 years. People most affected are young adults age 18 to 25 years.

Severe reactions can be seen with exposure to cold water. Swimming in cold water is the most common cause of a severe reaction. This can cause a massive release of histamine resulting in low blood pressure, fainting, shock.


Cold urticaria is diagnosed by holding an ice cube against the skin of the forearm for 1 to 5 minutes. A distinct hive should develop if you have cold urticaria. This is different than the normal redness that would be seen in people without cold urticaria.

I would imagine your doctor has told you to protect yourself from a rapid drop in body temperature and particularly swimming in cold water.

Regular antihistamines are not generally effective. But the antihistamine cyproheptadine (Periactin) has been found to be a useful treatment. The tricyclic antidepressant doxepin has also been found to be very effective .Finally, a medication called ketotifen, which keeps mast cells from releasing histamine, has also been used with success.

There may be many other meds that work.... perhaps newer or even better ones that I haven't heard about.

Good luck....

zuzu xxx


[This message has been edited by zuzu8 (edited 07-19-2003).]

 
Old 07-20-2003, 09:15 AM   #3
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mine is hereditary and i have already had it my whole life...everyone afflicted with it has had it since they were born...none of my doctors have heard of it, and some times i get a hive in my eye and it looks like pink eye. the eye doctors i go to have never heard of cold urticaria and want to do blood work when i get it again...i get the hives when i go in and out of air conditioning...i have had this far longer than the 5-6 years...

 
Old 07-20-2003, 07:30 PM   #4
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Hi-

Are you being treated at all? If so, what seems to help...or is the best thing avoidance of cold temperatures or avoiding changes in temps when possible? I hope you have some good "normal" time in between flare-ups.


When you say none of the doctors have heard of it, are you actually telling me that a specialist like a DERMATOLOGIST can't recognize this? ...I can ALMOST forgive the eye doc but if a dematologist or even your regular internist is the physician you are dealing with primarily for this and cold urticaria is unknown to them, I'd say it's time to find a new doctor.

zuzu xx


 
Old 07-20-2003, 08:59 PM   #5
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i have them on my legs now...(like RIGHT NOW) they never cause me any pain...but they sometimes get into my joints and i feel like i have arthritis, which is possible b/c my mom got it at a young age...generally i just cover it up in the winter...i have never heard of a cure...there are very few people ever documented to have this...
i dont go to a dermatologist b/c we can't afford it...my dad runs his own business and health insurance is outrageous, and i turn 18 in just over 4 months...
i guess my family has learned to deal with it...but i want to stop it...

 
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