LILMISSFITSY

My 2 yr old son has a deletion on the long arm of his chromosome 3, and we have been told that it is likely he is the only one in the world with this particular deletion. He has some very serious issues, but we are controlling things for now. We don't know what will happen with him, as we can only learn by him. Its amazing to see that there is someone else who might have some of the some problems out there. I see it was a very long time ago when you posted, so hoping you will get in touch somehow! Or indeed, anyone out there who might share my son's deletion on 3q29. Thanks. Sarah...Jamie's Mama. xx