Anybody else twitch???? - Rare Disorders Message Board

reneeintx · 04-21-2003, 07:04 PM

Does anyone else reading this have muscle twitches?? This is one annoying condition. It's called Benign fasiculation syndrome. If you have spontaneous muscle twitches please respond cuz I'd like to hear your story. Most people in the (BFS)world believe that our symptoms will progess to a horrible disease even though the neuro's say we won't.

If you have this please respond..PLEASE

Renee

kim simone · 04-22-2003, 07:41 PM

I'm a twitcher! Mostly gone (only a few bothersome ones a day)

Kim

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reneeintx · 04-22-2003, 09:48 PM

Kim,

The twitches drive me ca-razzy. Some days I have none then others it's popcorn city.

Hi thanks for responding. One response is great and makes me feel like I'm not the "only twitcher" in cyberspace.

Renee(still searching for the answers..if there is any

[This message has been edited by reneeintx (edited 04-22-2003).]

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kim simone · 04-23-2003, 02:56 PM

Renee,

I don't know about you, but I have been treating my BFS like a symptom of anxiety. I have accepted this, and treated it as such. Since then, I am down to a bare minimum of twitching. I really think it (anxiety)has a lot to do with it! The trick for me was to stop looking for different answers. My Dr. told me it was anxiety related, and I didn't believe him and kept searching for other answers. When I couldn't find them, I gave in, and gave it my all to work at getting "mentally" better. This way, I figured when that didn't work, I could go back to the Dr and say "I told ya so". The funny thing is, it's working, and now he's telling me "I told ya so"!

Kim

[This message has been edited by kim simone (edited 04-23-2003).]

[This message has been edited by moderator2 (edited 04-23-2003).]

reneeintx · 04-23-2003, 05:06 PM

Kim you are my twitching buddy (hugs)
I feel my searching is coming to an end. There isn't any "magic pill" for this except "acceptance". Slowly but surely I'm getting there and slowly, very slowly the twitching is decreasing..hopefully to a stop.

I'll see you sometime in the "other places".

Renee