projapoti

Hi Renee...thanks for your kind words. I really enjoy helping people on this board, and in a selfish way (*heehee*), it helps me keep up to date with my studies.

Yes, I have heard of BFS, and I know that it must be so aggravating/scary problem for people that have it. It's unfortunate that there's nothing really that you can do to cure it per se, but one thing I'm glad about in your case is that your doctor has taken the time to rule out the more serious things like Lou Gehrig's disease (i.e. ALS).

I want to warn you about one thing, be careful when you're searching for information on BFS, it's very common when you're doing that to get what I call "medstudentitis". For any given symptom that a patient presents with, there is always some type of serious problem that it COULD (and I stress COULD) be. For example, someone with a headache COULD have a brain tumour, someone with chest pain COULD be having a heart attack...something coughing COULD have lung cancer...etc. etc. Medstudentitis is when someone reads about a certain symptom and the words "jump off the page and in to the reader's body"...i.e. the reader thinks (s)he has something when (s)he really doesn't.

If you read about twitching, there will be all sorts of other neurological problems that you could find that are of similar severity as ALS...don't be alarmed by this. The doctor has taken the time to rule out more ominous things.

Anyway, that was me rambling! Thanks for sharing your story.