Spondyloepiphyseal Dysplasia Tarda - Rare Disorders Message Board

05-24-2003, 11:32 AM

Does anyone have it????

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ShaBaby

cris2 · 06-17-2003, 10:30 PM

Yes I have this and other family members its very rare do you have family in marland?

[This message has been edited by moderator2 (edited 06-18-2003).]

cris2 · 06-19-2003, 03:45 PM

Hope your daughter is doing ok.
Am anxious to exchanges posts on symptons shes having to compare the ones I currently am expeirencing.

Shababy · 07-27-2003, 08:56 PM

I found a place in california that specializes in this and they can do a outside scan program without you actually going to california. You just fill out the paperwork, send your scans, mri's, xrays, etc and they see if they can help you. Shoot, I can't think of the place right now! I'll think and post again.

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Shababy · 07-27-2003, 08:57 PM

I have family in Michigan, Ohio, Florida.

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