Hopefully someone knows a bit more about the pain my boyfriend is suffering from, 'cause so far no doctor can diagnose his disease.
My boyfriend suffers from pain on his left side of his body for about a year now. It started with pain on his chest at the left side. After a couple of weeks he experienced a numb feeling in his left arm and after that also in his left leg. He has a continuous headache at his left side that never disappears. He has experienced dizziness, is tired very quickly and sometimes has a blurry vision. His blood, heart, brain and stomach have been tested and besides some stomach problems nothing has been found. He's been to a pain specialist as well but even he can't do a thing for him. Is there anyone who knows more about what's going on with him?
Hi Marleen, Did the neurologist order a MRI of the brain? My husband started having trouble walking and numbness on right side of the body. ER diagnosed him with a stroke because CAT scan showed 1 lesion left side of brain. MRI done next day revealed several brain lesions and he was admitted to the hospital and had every test you could imagine for 15 days. They couldn't find a cause. Finally did a brain biopsy and was diagnosed with A.D.E.M. We were told it is very rare and a kin to MS. He was in hospital most of May and has been in therapy since then. I know I searched and searched for answers all the time he was in the hospital and since it is so rare, I didn't find it. Best of luck to you and your boyfriend. Keep us posted. Halley
Thanks for your reply. The neurologist my boyfriend went to did make an MRI scan but couldn't find anything. The weird thing is that the headache he's suffering from is at his left side. The neurologist said that if it was something neurological then his headache should be on the right side since the pain in his body is at the left. However, it sounds like it's definitely worth checking this A.D.E.M. In a couple of weeks he's going for a second opinion to a different neurologist, so we'll talk to him about this. Thanks again! I hope your husband is doing better now.
this is for halley, my grandmother is experiencing the same symptoms and i would like to help her. As you said this was A link to MS and she happens to have ms what could i do?, who could i take her to see.
Thank you, Andrew
I have been fighting pain on the left side of my body for a long time. At first I thought I was having a heart attack. Testing showed it was not a heart attack. Pain runs into the left side of my chest just above the rib cage, sometimes into my left arm. Pain is very bad at times. I finally found a doctor who gave me the reasons for the pain.
It is called Tietze Syndrome, it is an inflammation of the costochondral cartilages of the upper front chest, sometimes there is swelling and redness, but the pain is what really makes it bad. I have been taking Prednisone for about a week and am beginning to feel a lot better. I don't know if this will help you, but I'm hoping it does. I know how you must feel, please don't give up. Keep trying to find a doctor who will help you.
Wishing you the best,
I would like to know if anything has been found on your boyfriend, Marleen.
I have the same health issues that you have listed about your boyfriend. Mine started out with pain on the left side of my chest (Went to ER, thought I was having a heart attack!). Tested and nothing was wrong.
Pain started again, 6/02 and went to ER, thought I was having a heart attack again. This time I had a headache on the left side. They said nothing was wrong, (stress). I went to my doc after that and I had dizziness, headaches, and tingling in my left leg. I went to, ENT, Neurologist, and Physical Therapy, tested for mercury levels, had MRI on brain, and nothing! Currently I have problems with my left side hurting. Left shoulder, left neck, left side of head (headaches), left foot, left side of my stomach aches and burns. I am going to the doc to see what the stomach problem is.. But currently they can't find anything. Please post and let me know if you have made any progress. I also have a friend who has the same problems and he moved from Alaska to California thinking it has something to do with the Environment.
I have very interested in finding out from anyone on this forum. Thanks -- Shawn
I've been experiencing chronic pain on the left side of my body for about ten years (since I was in my mid 20's).
I've been mis-diagnosed with TMJ and other conditions. I had CT scans, MRI's, Extensive Bloodwork, and Cardio tests.... (the pain/numbness radiates down my left arm and leg; and includes foot pain, lower back pain, chest pain, neck pain and headaches - all of which occur on the left side of my body.)
Most recently, (at a party!!) a Physical Therapist noticed that my left leg is over an inch shorter than my right leg.... which is causing pelvic, neck and spinal mis-alignment; among other issues -- ALL of which can be cured with a simple shoe insert or shoe lift and extensive, but temporary bodywork (rolfing, pt, orthopedic massage, etc.)
Having undergone years of unecessary testing (and anxiety), I recommend having the muscular-skeletal system checked first.
I have exactly what your boyfriend is describing. I wish I had an answer for you. I am now in my 1 and a half year mark. It has been hard, very hard on me. I have been searching on the Internet for over a year now and I have never read something so close to what I have been feeling. I hope that you and your boyfriend get an answer.
Just to note I have had an MRA(close to an MRI), two xrays and many blood tests. My mother had a brain anyuersim that is why my nuro went with the MRA instead of the MRI. My doctor is think of sending me to UVA for more details test and study. If I do break down and go there I bet I will get an answer. My mother spent 20 days there and they saved her life. They are amazing there. In my mind the best in the world. (an no I didn't go to school there). I just pat them on the back when I get a chance.
Anyway, good luck and if you can let me know if they find out what is wrong my emails is cmoats AT systemetrixs . com
I'm having the same issue as has been described above. Tingling in the left leg, hand, the left have of the face, and more recently mild headache or discomfort on the left side of the head as well as mild signs of nausea. Unfortunately I don't have insurance at the moment, so getting all the exhaustive testing isn't really an option. If someone with these symptoms gets a reliable diagnosis, a post would be much appreciated. Thanks