Re: PFAPA in adults
I just found your post and I hope you are still using this site.
I have PFAPA for about 11 years now since I was 18. I was diagnosed when I was 26 when I was finally referred to an immunologist. He checked my tonsil and told me I had none, at some stage my body must have had an auto tonsillectomy, removed the tonsil itself. Despite the fact I had no tonsil I still have fevers. However I find that the severity has lessen over the years, reduced stress, get lots of sleep, staying warm, no spicy food, limited alcohol has helped; the best is to exercise I find.
Hope to hear more of your story, hope this helps.