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Old 07-06-2012, 07:04 PM   #1
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rare choking episodes

I'm looking for others who experience the same thing I have. As long as I can remember, I've had occasional choking episodes where I involuntarily swallow (usually only happens with fluids or saliva) and I sound like I have asthma, I find myself gasping for air.

I don't seem to have the normal 'cough' reflex that other people have when something goes the wrong way. I just feel as though I don't have enough air in my lungs to cough and I can barely get any air in. It often takes me several minutes to be able to breathe normally again. From what I've read, I believe that the epiglottis (the flap covering the windpipe) goes into convulsion. I've even woken up in the middle of the night gasping, feeling as if that 'flap' had closed over the wrong way. I don't have acid reflux or any pain, so I don't believe it is an esophageal problem.

If I'm careful eating and drinking, this doesn't happen very often, but when it does it is very scary. I did see an ENT specialist and had a barium swallow done. He simply called it a "nervous throat", but didn't offer any suggestions or treatments. I'm left feeling as if I'm the only person in the world with this problem. Are there any others???

 
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Old 08-03-2012, 08:44 AM   #2
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Re: rare choking episodes

You're not the only one who has that. I do too but I haven't seen a doctor yet so I'm not sure what exactly causes it. I just know if I'm eating I sometimes choke. I feel like the food is going down too fast. Or I could be watching a movie on tv and all of a sudden it feels like my throat is closing up. I assume that's a part of my anxiety but the choking part, I 'm not too sure. I can't give you any suggestions other than maybe see another doc and get tests run.
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Old 08-31-2012, 09:38 AM   #3
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Talking Re: rare choking episodes

Hi Cindy, I think by now you see that your truly not alone in suffering from this horrible condition. A few years ago I got my first episode, and it was the second most scariest thing I ever experienced. ( the "first" is for another day. All I did was take a zip of my tea and BAMM! my throat had completely closed up. I couldn't get any air in, it was so bad that I was seconds away from fainting. It took three days to get over the headache I had from being deprived of air for that long. That year I had only two episodes, but now I pretty-well get these chocking fits once or twice a month.
The doctor visites were as disappointing as always... The first visite I was told I had something called Lingual-Dystonia. The doctor scratched his head and said it was very rare for an adult to get this. Usually in happens in children and they grow out of it. I was so happy to finally get a diagnose. HOWEVER... When I did my own research on L-D, I found out it's not at all what we have. Apparently it affects your tongue, it's spams to the point were you can't talk. But no chocking was mentioned, the only thing that matched my case was a trama to the neck can cause this condition.
So a month ago after having a really bad episode to were I hurt my knees from falling to the ground cause NO air getting in. I decided to see the doc again. Well long story short... Now he says it's either a reaction to the long term medications I've been on for my chronic neuro-condition.(which I can't stop) OR.. A sensitivity to the environment. In otherwards my allergies to life??? Lol
He told me that it's rare to faint from this, however if you do it's actually a good thing. Because the muscle will relax when your out, that way you'll automaticaly breath on your own. Right!.. easy for him to say that. He said that no matter how closed the muscle is, you have to try to breath out of your nose. It gives the muscle a chance to relax and it should open quickly. He also mentioned that you should always have water with you and to drink as much as you can to keep your throat moisturized. We also did the test where they put the camera in my troat, and they saw that my whole throat was extreamly red. Did you have a chance to do this test again and see if you were as raw as I am, in the back of your throat?
I quess you of all people can understand my fustration. Not much of a diagnose to be happy with. I'm trying to find a way to put together a community of people, to were we can support each other with this conditon. And my hopes is to get a large enough community, so we can petition for more research on this frightful-problem. Their are many people who suffer from this and have all been left to fend for themselves.
I wish you all the best and to keep strong. Remember to breath through your nose and try to remain calm when it happens, it will help to relax the muscle. I know thats the hardess thing to do in the moment. Keep returning to your doctor untill he find the reasons why this is happening to you. Then....Please let me know what he says.

 
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Old 09-06-2012, 10:00 AM   #4
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Re: rare choking episodes

I don't know if this will help any of you but there was an article in the Free Lance Star on 9/1/2012 in Fredericksburg, VA that told about a story of a woman who coughed all the time and had different upper respitory problems over the years. There is a Dr. Timothy Sherwood who is one of two doctors, one in Harvard that works on an Airway Program and will do surgery for the problem she had in her trachea. I thought maybe it would give you an opportunity to check this out and see if he could help any of you. I hope this helps.

 
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Old 09-06-2012, 06:46 PM   #5
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Smile Re: rare choking episodes

Quote:
Originally Posted by renko View Post
I don't know if this will help any of you but there was an article in the Free Lance Star on 9/1/2012 in Fredericksburg, VA that told about a story of a woman who coughed all the time and had different upper respitory problems over the years. There is a Dr. Timothy Sherwood who is one of two doctors, one in Harvard that works on an Airway Program and will do surgery for the problem she had in her trachea. I thought maybe it would give you an opportunity to check this out and see if he could help any of you. I hope this helps.
Thank-you so much for this interesting lead. I will definitly check it out, and if ever this leads to something...You'll have d*****atly changed my life

 
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Old 12-29-2012, 08:03 AM   #6
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Re: rare choking episodes

I have had that same problem and finally an ENT sent me to Neuro who dx me with Lambert Eaton Mysthenic Syndrome (aka LEMS) kinda like Mysthenia Gravis.

 
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Old 07-31-2013, 11:36 AM   #7
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Re: rare choking episodes

Hi I too have choking episodes which never happen in front doctors so hard to explain I have autoimmune condition and take medication wonder if same as you I have had to cope with this for years my kids are traumatised by it but told if pass out musles relax can you help have you got name for it

 
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