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-   -   My painmanagement DR told me that it looks Essential Benign Blepharospasm. (http://www.healthboards.com/boards/rare-disorders/915672-my-painmanagement-dr-told-me-looks-essential-benign-blepharospasm.html)

debnz 08-25-2012 11:51 PM

My painmanagement DR told me that it looks Essential Benign Blepharospasm.
 
Hi there I a patient that suffers from PV, (idiopathic Erythrocytosis) Polycythaemia Vera, and My Pain Management Doctor, tells me that I have Fibromyalgia,I suffer from chronic Migraines, with or without Aura, that I also have Hypertension and now a non smoker smokefree for 108 days. and tells me my eye condition is Essential Benign Blepharospasm or Focal Dystonia, is this a new condition, not related to My PV? Is there anyone that could tell me, I seen a eye specialist, he did not confirm the EBB, he Just said that the back of my eye look fine, and unbelievable healthy, as for the front, he said that my problem is related to my headaches and that he would write to my doctor and that I start immediately on the eye drops, take them 3 times a day one drop in the right eye. Is there anyone that could help me out, thanks

August59 11-06-2012 11:37 PM

Re: My painmanagement DR told me that it looks Essential Benign Blepharospasm.
 
I believe a fully credited eye doctor, which I geuss is an opthamologist would be the one to go to on that. It sounds like something that would at least need to be accessed and then routinely followed up on.

debnz 11-07-2012 03:40 PM

Re: My painmanagement DR told me that it looks Essential Benign Blepharospasm.
 
[QUOTE=August59;5084894]I believe a fully credited eye doctor, which I geuss is an opthamologist would be the one to go to on that. It sounds like something that would at least need to be accessed and then routinely followed up on.[/QUOTE

Hay thanks August59, I have seen a Opthamologist now, and they believe its related to migraines that I was having not the dystonia thingee. Which is great news. thanks for your comment thro, much appreciated, nice to know that there are people that do care. thanks again.


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