Child with Periodic Recurring Fever
I have a 10-year old son who has been dealing with some type of fever disorder since he was 5-years old (we suspect he had this as an infant as well). His fevers do not follow a specific pattern, although his fever cycles tend to begin around October and will last through spring (Feb/March). Typically, he will have a low grade fever - between 100 and 101 - during episodes. These episodes can last from 5-7 days, and on some occasions, even longer. No other symptoms other than occasional headaches during episodes.
For years, my son went through blood test after blood test - with everything being normal with exception of elevated SED rate and C Reactive protein: both of these are typical of certain fever disorders. We even saw a gene dr. to test for Familial Mediterranean Fever but no gene link was found.
A fever disorder specialist at San Diego Children's Hospital was inclined to diagnose him with PFAPA when he was 7 (3 years ago). We were also told that he would likely grow out of it. Last year, his fevers went away and we thought that he "grew out" of it. Unfortunately, his fevers have returned over the past 30 days, following the same pattern.
Looking for families dealing with children long term fever issues, PFAPA, TRAPS, etc. I'm hopeful that he will grow out of this but this latest "relapse" has really taken the winds out of our sails. Has anyone had a child eventually try meds? Does your child have recurring fevers? Any help, feedback, advise would be appreciated.