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Ear Cartilage pain


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Old 01-20-2013, 06:29 AM   #1
Conkers
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Ear Cartilage pain

Hell everyone,

I am new to this but have come across a few posts dated back to 2007 from Stepper etc on this subject and I just wondered if there were any updates on this issue. People were trying B6 supplements etc...

My beloved sister has been suffering from ear cartilage pain for about 5 years now. It started by her having a few twinges and has, over the years, progressed into chronic pain. She also has pain on the side of her neck (muscles on either side of her windpipe) and also has sore thumb joints and general tiredness. The doctor has just last week diagnosed her with polychondritis but I think that was mainly because all her blood work is fine (no markers whatsoever) and he has run out of options. She has been put on steroids for 6 weeks to see if they help and they do seem to be working. It is all very scary for her and our family.

I also started (4 months ago) having joint pain in my wrists, fingers, thumb, twinges in my big toe, ankles, mainly on my right side. I also have fullness in my right ear and have to constantly pop my ear and the odd twinge. I feel very tired and have low iron levels (20). I am seeing a rhemy in a few weeks. My GP thinks is could be slapped cheek virus (Parvo) but I don't think it is. I have tested negative for Rheumatoid Arthritis (ccp blood test and rheumatoid factor). B12 is fine but not tested for B6. I have now idea what is wrong but worry about lupus and polychondritis.

I just wanted to see if anyone had any updates on their condition and to see if anyone with ear cartilidge pain has any suggestions for alternative treatment or any tips on easing my sisters ear pain.

Thank you everyone.

 
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Old 01-10-2016, 10:40 AM   #2
Dollyslingback
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Re: Ear Cartilage pain

Hi, I am new to this site and have also been diagnosed with relapsing polychrondritis. I have a hole in the septum and some ear pain with the beginnings of a cauliflower ear. I did have a weak positive and and I too was given a course of prednisolone. It helped but did not prevent the issues and now they have started me on azathioprine. I am concerned about this drug as ther are lots of side effects but I want to stop or delay the diesease also.
I have found blogs which suggest there is a trigger issue and you need to monitor what makes any episodes worse. One person found carpets were his problem and had them removed and replaced with wood flooring. It did not get rid of the issue but it did calm it down quite considerably. Does you sister have any know allergies?

I as only diagnosed recently but if you sister wishes to share any information, or yourself, then I'd be happy to keep in touch as there does not seem to be much on this illness, that I'm aware of.

Take care
Dollyslingback

 
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Old 06-01-2016, 06:41 PM   #3
Big1green
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Re: Ear Cartilage pain

I have had fatigue and osteoarthritis. I was referred to an RA and had an antibody showing mixed connective tissue disease throughlabwork. The other tests were negative meaning they didn't know any specific disease such as lupus. I just happened to mention how much my ear cartilage had also been hurting, especially if I slept on my side at night. She said that this is indicative of polychondritis and has put me on oral prednisone. I also have tmj and degenerative disk disease but these are separate diagnoses. I feel as if my joints and cartilage are disappearing, but I have a good doctor and will go with her recommendations. After reading about polychondritis, it can get quite dangerous affecting the cartilage of the nose, windpipe and bronchial tree. Please see a rheumatologist. It appears the treatment is the steroid treatment. I used to get pain between my ribs but they said this is due to stress. Arthritis is very painful especially in the small joints like the fingers. Although it may seem like they are all related, it may be due to several different diseases that manifest more as we age. Best wishes! Quote=Conkers;5120039]Hell everyone,

I am new to this but have come across a few posts dated back to 2007 from Stepper etc on this subject and I just wondered if there were any updates on this issue. People were trying B6 supplements etc...

My beloved sister has been suffering from ear cartilage pain for about 5 years now. It started by her having a few twinges and has, over the years, progressed into chronic pain. She also has pain on the side of her neck (muscles on either side of her windpipe) and also has sore thumb joints and general tiredness. The doctor has just last week diagnosed her with polychondritis but I think that was mainly because all her blood work is fine (no markers whatsoever) and he has run out of options. She has been put on steroids for 6 weeks to see if they help and they do seem to be working. It is all very scary for her and our family.

I also started (4 months ago) having joint pain in my wrists, fingers, thumb, twinges in my big toe, ankles, mainly on my right side. I also have fullness in my right ear and have to constantly pop my ear and the odd twinge. I feel very tired and have low iron levels (20). I am seeing a rhemy in a few weeks. My GP thinks is could be slapped cheek virus (Parvo) but I don't think it is. I have tested negative for Rheumatoid Arthritis (ccp blood test and rheumatoid factor). B12 is fine but not tested for B6. I have now idea what is wrong but worry about lupus and polychondritis.

I just wanted to see if anyone had any updates on their condition and to see if anyone with ear cartilidge pain has any suggestions for alternative treatment or any tips on easing my sisters ear pain.

Thank you everyone.[/QUOTE]

 
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Old 06-01-2016, 06:45 PM   #4
Big1green
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Re: Ear Cartilage pain

That is interesting. I have allergies as well. I wonder if allergies are somehow related to polychondritis? Prednisone relieves both. Do you know of any research on this?

QUOTE=Dollyslingback;5398894]Hi, I am new to this site and have also been diagnosed with relapsing polychrondritis. I have a hole in the septum and some ear pain with the beginnings of a cauliflower ear. I did have a weak positive and and I too was given a course of prednisolone. It helped but did not prevent the issues and now they have started me on azathioprine. I am concerned about this drug as ther are lots of side effects but I want to stop or delay the diesease also.
I have found blogs which suggest there is a trigger issue and you need to monitor what makes any episodes worse. One person found carpets were his problem and had them removed and replaced with wood flooring. It did not get rid of the issue but it did calm it down quite considerably. Does you sister have any know allergies?

I as only diagnosed recently but if you sister wishes to share any information, or yourself, then I'd be happy to keep in touch as there does not seem to be much on this illness, that I'm aware of.

Take care
Dollyslingback[/QUOTE]

 
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