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Raynaud's Syndrome Message Board
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Old 05-27-2004, 07:40 PM   #1
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melly88888 HB User
Raynaud's disease

I think I may have Raynaud's disease. After I got badly frostbitten a few years ago I have had terrible circulation in my hands. If I am even in air conditioning sometimes my hands turn white and lose circulation. If I make sure I keep my hands covered during the winter the circulation is better; however, if I forget to wear gloves outside and my hands get too cold ...my circulation is worse for a few months. My sister is a nurse and thinks I may have it. It was bad for awhile and then it got a little better....but I still have poor circulation there. Is there anything I can do? Will it ever go away? Thanks for your help!

 
Old 05-30-2004, 03:03 PM   #2
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Re: Raynaud's disease

I have Raynaud's Syndrome. A rheumatologist can test you for it. The only thing you can do is keep your hands and feet warm. There are different herbs I have read about that may help. However best thing to do is always wear gloves in winter. Some people have it so bad that they wear gloves just to grab something from the freezer. You should really get an ANA blood test for starters, then may want more tests based on those results. Those that have Raynaud's often have other autoimmunity disorders too. Raynaud's is diagnosised by looking at the capillaries in the fingernails under a microscope.

 
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Old 05-30-2004, 03:42 PM   #3
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Re: Raynaud's disease

Thanks so much for your reply. I'm not exactly sure if I have it or not. My sister is a nurse and thinks that I do. It is the worst during the winter months and I always wear my gloves. It seems to have gotten a little bit better. I have thought it was always connected to autoimmune disorders too...although I never have been tested for one. I do get sick with sinus infections consistently and saw an ENT b/c I thought it was connected to allergies or a sinus disorder...unfortunately all of the tests came back negative..not allergies not a sinus problem. I work with young children and thought that might be part of it too. Is there anything that you take to help with Raynaud's? When were you diagnosed. I am 27 years old and just have not had myself tested. I will have to go to a rheumatologist and see if I have it or not...and if I have another autoimmune disorder. Thanks again for your help. If you know of any herbs or vitamins I should try please let me know. Thanks again.

 
Old 05-30-2004, 03:43 PM   #4
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Re: Raynaud's disease

By the way what is an ANA blood test? Does a rheumatologist take care of that?

 
Old 06-02-2004, 05:53 PM   #5
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AngelaA HB User
Re: Raynaud's disease

Quote:
Originally Posted by melly88888
Thanks so much for your reply. I'm not exactly sure if I have it or not. My sister is a nurse and thinks that I do. It is the worst during the winter months and I always wear my gloves. It seems to have gotten a little bit better. I have thought it was always connected to autoimmune disorders too...although I never have been tested for one. I do get sick with sinus infections consistently and saw an ENT b/c I thought it was connected to allergies or a sinus disorder...unfortunately all of the tests came back negative..not allergies not a sinus problem. I work with young children and thought that might be part of it too. Is there anything that you take to help with Raynaud's? When were you diagnosed. I am 27 years old and just have not had myself tested. I will have to go to a rheumatologist and see if I have it or not...and if I have another autoimmune disorder. Thanks again for your help. If you know of any herbs or vitamins I should try please let me know. Thanks again.
Melly - Autoimmunity doesn't have any connection with sinus infections. Autoimmunity is the body attacking itself. Sinus infections are often associated, besides allergies, with where you live, where you work (working for kids puts you at risk) and having a sinus polyp, deviated septum or other nasal or sinus abnormality. For sinuses I recommend using Nutribiotics nasal spray and tablets which are made from grapefruit seed extract. My friend told me about them and it really helps.

To answer your other questions I was diagnosed at Raynaud's at age 34, but I suspect I have had it for well over a decade. As for testing, if you have a general practioner that is easy to deal with you can ask them for the test. My high ANA was first discovered by a neurologist because I was having a sudden onset of migraines. I went to the rheumo for further testing but have not gone back because he said he can't help me unless I get fullblown Lupus. My ob/gyno that treats me hypothyroidism (Hashimotos) orders ANA and Liver function tests to keep check of my levels. The rheumo is not under insurance and costs $300 a visit so that is another reason not to see him when I can get the same tests ordered by my regualr dr. ANA simply means anti-nuclear antibodies test. It measures the amount of antibodies your body has made in attacking itself. Just an FYI-many folks don't know that other wellknown diseases like diabetes, rheumatoid arthritis, hypothyroidism and Addison's disease are all forms of autoimmunity. If any of these are common in your family then your chances of having autoimmunity are much greater. Unfortunately autoimmune patients tend to have more than one form of autoimmunity. For instance I have hypothyroid, Addison's, Raynaud's and Dermamyositis, plus I am hypoglycemic which you could say is a reverse form of diabetes that I have because my adrenal glands barely function. ANA test results show up in what is called patterns and the type of pattern can indicate which cluster of diseases you might be prone to getting. Get tested when you are menstruating(if you are female that is). ANA tends to be higher during that time and may make the difference in a test coming up borderline or positive. It can vary weekly. Mine goes up and down like a yo-yo. I know of no herbs to treat Raynauds, sorry.

 
Old 06-02-2004, 08:08 PM   #6
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Re: Raynaud's disease

Angela,
Thank you so much for your reply. I think I did get Raynaud's from frostbite...and I think I have primary raynaud's versus secondary which I think means that Raynaud's occurs in conjunction with another autoimmune disease?...I think. Would you recommend getting an ANA test done?...or should I wait and see. If I do find that there is a cluster of diseases I may get is there a way that I could prevent them?...I think that is what you meant that the ANA test could possibly determine...what possible illnesses you could get. My mom has thyroid problems and I have read that there is quite a genetic link. Thank you again SO much for your help!! I truly appreciate it!!!

 
Old 06-02-2004, 08:11 PM   #7
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Re: Raynaud's disease

Angela,
By the way, where can I get the nutribiotics nasal spray and tablets for sinus infections. Do the tablets have a certain name? Thanks again. You provided me with so much helpful information.

 
Old 06-06-2004, 10:42 PM   #8
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AngelaA HB User
Re: Raynaud's disease

Quote:
Originally Posted by melly88888
Angela,
By the way, where can I get the nutribiotics nasal spray and tablets for sinus infections. Do the tablets have a certain name? Thanks again. You provided me with so much helpful information.
To answer you first question, yes I would definitely recommend getting the ANA test. The tablets are called simply "Nutribiotic tablets" & for spray substitute the words nasal spray at the end. They do make a capsule now that has some other stuff mixed in, but the tablets work best for sinuses. They also make an eardrop which is a bit hard to find. Health food stores usually carry it, but also online stores like VitaminShoppe carry it at about half the price of my local health store. Seems like there is a website by the manufacturer which I would suggest checking out as it will explain how grapefruit seed extract works (more commonly known as "GSE").

 
Old 06-07-2004, 03:45 PM   #9
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Re: Raynaud's disease

Thank you so much!

 
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