Thanks for your response. I seem to just be moving along a long dog trail and at ever corner there is something else.
I have neuropathy and although not diagnosed I know I have had Raynauds for quiet sometime. I live in sunny FL
and I don't think I would survive where it is colder.
I have long had a dry cough then I developed a cough that was severe to the point I would stop breathing. My GP sent me to a pulmonary doctor. He did a CT Scan which revealed nodules in both lungs. So then he did a biopsy. The biopsy was negative for all the bad stuff. He said they had no connection to the cough. He did a lot of lab work, and everything came back positive for auto immune problems. Just before that I had asked my doctor to do a GAD 65 test which relates to autoimmune diabetes. I had been classified as a type 2 as most older people are. But with that finding an autoimmune problem changed the diagnosis. I have briefly read post on Healthboard but have not asked about Raynauds. I did ask on the neuropathy I am on but none of them have such problems.
I figure this is secondary to something but am surprised that there is not a Raynauds board.
The lung doctor referred me to a Rheumatologist. He had done several good test and then the lab listed with the results of that test follow up that should be done on the samples they had. The Rheumatologist looked at the tests from the lung doctor and said she didn't know anything about that.
She only did an antinuclear test. It came back positive. She just told me everything is ok. The letter she sent to my GP left the GP, lung doc and me in total disbelief. She said I don't have Raynauds or anything else. And the day I was there I had on a light jacket but was still cold cold. My feet and hands were at their most brilliant colors, purple, red, and some snow white. It wasn't that she missed it, like had the color being good.
The lab done so far shows the most likely thing to be SLE and next Lupus. My GP is referring me to another rheumatologist. The lung doc tried to be nice when he saw the letter, but there just is not anything nice to say.
I always like to learn as much as I can about anything that effects me. I have read some good articles on the net, but I also like to get comments from real live people.
How is this handled other than staying warm? I have in the past just not taken it very seriously. But recently there are times when my hands are so bad it is difficult to do anything. I just can't type when they are like that. Music is my number one escape. I play keyboard and the Raynauds really makes that impssible. There are times though when I am ok enough to play or use the computer.