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Raynaud's Syndrome Message Board
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Old 02-13-2007, 03:46 PM   #1
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danibeth_2000 HB User
Raynaudís Disease

i went to my cardio docter for a blood pressure issue and he said that besides it being really low that it's fine but then he brought up something completly different. he thinks i might have Raynaudís Disease, beacuse my fingers and toes go numb and turn white when it gets chilly, yet it happens mainly in my toes, or is it just beacuse i often where gloves and keep my hands warm. should i bother pressuing the matter or just live with it? i have been having these problems for at lesat 6 years now, and i always thought it was normal. what should i do?

 
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Old 02-13-2007, 06:04 PM   #2
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jectac HB User
Re: Raynaudís Disease

From what I understand, there is no know cause or cure for Raynaud's Disease. It is more of a condition brought on by touching cold items, and also stress. Depending on the severity, medications can be prescribed that enlarge the blood vessels, to aide in blood flow to the effected areas.

 
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Old 02-13-2007, 10:02 PM   #3
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Re: Raynaudís Disease

thanks for the input, even though there is nothing i really can do about it, it is nice to know what it is, so i can better understand it. i'll talk to my physisian about the blood flow meds, but i can deal with the numbness, i just got to be careful when i am numb as not to break any toes or fingers. but again thanks for the input.

 
Old 02-15-2007, 02:38 PM   #4
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Re: Raynaudís Disease

Go on Google and type in Raynauds Phenomenon or Raynauds Syndrome. There is a lot of detailed websites about it and more information. It's best to be diagnosed with Raynauds however incase its secondary Raynauds which is usually caused by Arthritis and I think also Sceloderma.

Raynauds can affect your ears, nose, feet and hands. The affected areas usually become numb with pins and needles and change in colour. It's usually quite painful during a Raynauds attack too (in severe cases). Most people during a Raynauds attack, when their circulation is improving the affected area will become usually red or sometimes even grey and/or blue.

Best to get a referral to a Raynauds specalist to be certain.

 
Old 02-15-2007, 07:15 PM   #5
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Re: Raynaudís Disease

thanks for the advise,
usualy when my toes, fingers and even ears go white they are numb as i can't feel them at all, it dosnt' even feel like i have them, but when they begin to get feeling it is alot like pins and needles and dose burn alot. thanks for writing in. i'm secheduled for a d.o. appt. next wendsday so hopefuly i can get this settled.

 
Old 02-21-2007, 02:14 PM   #6
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Re: Raynaudís Disease

went to my d.o. today and after some basic tests, i was quickly diagnosed with Raynaud's Disease, my docter offered a medication but beause of my low blood pressure she can't give it to me, so she told me to get really thick scoks, gloves, and earmuffs to wear out side, where socks to bed and where gloves any time i go into the freezer. other then that she said that if any thing went permentaly numb to come and see her. so i am now part of the 2% of people round the content to have Raynads. i'm just glad that i have diagnosis and now how to treat it. thank for the replies.

Last edited by danibeth_2000; 02-21-2007 at 02:15 PM.

 
Old 03-17-2007, 09:07 AM   #7
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Re: Raynaudís Disease

Hi

I was also diagnosed with Raynauds many years ago and it affected my fingers by sending them numb/white when I touched something colder than the ambient temperature.

There are some things that can also make Raynauds worse. For me, I changed my job and this meant that I did a lot less keyboard work which reduced the impact on my fingers. I also stopped taking birth control pills.

I now get an occassional attack during winter but nothing like I used to get.

regards
ktee_uk

 
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