I gave in and went to see my dermatologist's office yesterday.
I consider myself lucky that the doc I got was a very nice doc. I usually see a male doc and she was a lady doc. She actually listened to every word I said.
I had to go through ALL of my issues again and she asked about my symptoms in detail. She looked at my skin and I mentioned Vee's biopsy and checking for the lupus subset. It was nice to have another doc care. My rheumy did too but I think he may be leaning too much on that hypermobility syndrome. I hope he takes all of the other symptoms into account the next time I see him.
The derm- She took a while looking at my skin and said the face does not look much like a malar rash, but when she saw my hands, she actually acknowledged that it may be lupus. And she didn't even see them while in a full blown episode like these past two weeks. The open wound was scarring and starting to get better. My skin has been stiffening up a lot as well & fingers get pudgy, as if retaining water. So I mentioned that too. And def the photosensitivity.
She wants to do the biopsies, like I mentioned to her, but wants to wait to see if I have an episode again. I will see her in about 3 weeks for the biopsies if I don't get an episode before.
For the first time!!! One doc that did acknowledge something truly going on that may be of autoimmune nature. Kind of a relief that I'm not going nuts.
I asked her about my hands & feet turning blue & purple. She mentioned Raynaud's. This has been happening with much more frequency lately, which has been worrying me.
So, my Raynaud's question to everyone is...does it happen a lot right after you get out of the shower/bath? As soon as I get out and the cold air hits me, my hands go purple in some spots and white in others. Weird! my toes turn bluish after being exposed to cold air, like A/C at work. I know it is starting to be noticeable because my husband noticed. And he never did before! His reaction was very surprised.
How much should I have to worry about turning blue & purple?
Any experiences with Raynaud's or skin issues in general would be helpful.