My 15 year old daughter has had a problem with her feet turing purple. Yes they litterally get purple! Mostly the toes and up on her feet a few inches. We have been to the doctor and they just said its bad circulation. I tried questioning them further but of course they said it was no big deal. She doesnt get much pain with it. They do get very cold to the touch. Basically they start turning white to pretty dark purple in a matter of minutes. If she moves around, example walking. They do pink up a bit but not much, but they are always in some various shade of purple. She has had issues with cronic ICP in the past. Her levels have not been bad for a few years though. Not sure if they could be related. When she gets sores on her feet they take a very long time to heal.
She hasn't noticed this in her hands as of yet and hopefully it wont continue on to those anytime soon.
She does have Raynauds on her fathers side. Could this be the start or something else maybe?
Feel free to comment if you think I should move this post to another board. I'm at a loss and dont know what to do, but its bothering me a great deal. And of course my daughter is sick of people asking if her feet are dying!
Do get her to a vascular surgeon. I know "surgeon" sounds scary but that is not what you're going for.
You want a doctor who knows what is really happening. That person can have an ultrasound done of her legs/feet/etc and determine the actual circulation; they will advise accordingly.
Besides that she should truly concentrate on keeping her feet/legs warm at all times. No binding socks/stockings/shoes. Just common sense :-). Is is, for example, really easy for her to tie/velcro shoes/sneakers on too tightly.. not a good thing.
my feet turn purplish black and often don't even go white first I'm not sure if it's raynauds or not but that is what they have ti diagnosed with does your daughter get livedo reticularis this is a mottle net like purplish coloration to her legs and arms?
It sounds like possible secondary Raynaud's due to the sores you are describing. Does she experience any pain, or numbness ( pins and needle's) when they start to change colors? You may want to have your doctor run some blood test. It is possible for Raynaud's to be linked to Connective Tissue Disorders like Scleroderma, and lupus. I have Raynaud's and experience red, white, purple, and black feet, and I also have developed ulcer's on my toes as well. This stuff is stressful, and can get scary, so the more knowledge you have the better! Hopefully her symptoms start to improve. Best of luck to her.
I also a teen and suffer from raynauds, I can't really say any more, but the support I get on here is fantastic, perhaps she should join. It really helps me, I'm on a couple of these forums, another good one is the raynauds and sceledroma association. I can't express how beneficial it would be. Just a suggestion. All the best for your daughter x