It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Raynaud's Syndrome Message Board
Post New Thread   Reply Reply
LinkBack Thread Tools
Old 02-11-2012, 05:53 PM   #1
Senior Member
(female)
 
frenchfri1003's Avatar
 
Join Date: Jan 2011
Location: Kings Park, NY USA
Posts: 265
frenchfri1003 HB Userfrenchfri1003 HB Userfrenchfri1003 HB Userfrenchfri1003 HB Userfrenchfri1003 HB Userfrenchfri1003 HB Userfrenchfri1003 HB User
Question Rsd vs raynauds

I am totally confused and not sure who to believe anymore. Here is a little background info.
12/09/2010 ACDF C5-6 C6-7
9/2/2011 Rear ended as a driver
I was pretty much better after my surgery with ROM and strength. Then I was rear ended and back at square one as far as ROM and strength was concerned. Then my hands and feet started getting cold and reddish to bluish. Then same affects to my toes and feet. Then the opposite occurred red and burning and swollen toes mainly and fingers and palms. It hurt to walk at times and I couldn't wear my rings and was losing strength in my hands. OSS wasn't sure what the situation was. He sent me to a vascular surgeon who said it was RSD. Then I did more research and needed to find someone to treat the issues. Found a physiatrist that is knowledgeable with RDS. Not so easy. Finally did and went to the appointment. He felt it wasn't RSD due to similar symptoms in both hands and feet. He said that it generally affects either the right or left but not both at the same time. He felt is was Raynauds. He feels an EMG is warranted and will try a Stellate Ganglion Nerve Block to see if that helps. Any thoughts about where to go or what to do would be helpful?

 
Reply With Quote
Old 02-14-2012, 11:12 AM   #2
Veteran
(female)
 
luca689's Avatar
 
Join Date: Oct 2004
Posts: 450
luca689 HB Userluca689 HB Userluca689 HB Userluca689 HB Userluca689 HB Userluca689 HB Userluca689 HB Userluca689 HB Userluca689 HB Userluca689 HB Userluca689 HB User
Re: Rsd vs raynauds

Raynaud's is fairly simple to diagnose by the cold stimulation test, but harder to sort out it's form. It's vasospastic attacks are brought on by cold, stress, or change in temperature. Usually the hands and feet are involved but can include the ears, lips and nipples. I've not heard of it being caused by a car accident, although it can be caused by repetitive vibrational motion, such as that caused by jackhammers. There are 2 forms of it: primary and secondary. It is usually treated by keeping warm, lowering stress, stopping smoking. More severe cases can be treated with drugs such as calcium channel blockers and the neuropathy is sometimes treated with gabapentin. Other drugs such as viagra can also be effective as well as topical nitro. The nerve block option for Raynaud's is usually used in treatment after ulcers or tissue necrotization has occurred. Primary Raynaud's is the form most people have and is not associated with autoimmune disease and is distinguished by visual examination of your nailfold capillaries and blood tests. RSD has a different set of diagnostic criteria that I am not really familiar with, but I believe that symptoms overlap with other conditions and can make that diagnosis difficult. I might find an expert in Raynaud's or a rheumatologist and get their opinion if my symptoms did not worsen. Ask a lot of a questions as to what rules one condition in or out if you feel comfortable with just staying with your current Dr's. and what your alternative non-invasive treatment options are, and what would be the outcome of the nerve block in one condition or the other and why the Dr thinks that is my best option. And as always, build a good relationship with the Dr so that you feel comfortable with them and trust their diagnosis and that your Dr trusts you to follow your treatment plan. I hope this helps a little bit, and good luck!

 
Reply With Quote
Sponsors Lightbulb
   
Old 06-25-2012, 07:21 AM   #3
Member
(female)
 
sophia554's Avatar
 
Join Date: Feb 2011
Location: Michigan, USA
Posts: 53
sophia554 HB Usersophia554 HB User
Re: Rsd vs raynauds

Quote:
Originally Posted by frenchfri1003 View Post
I am totally confused and not sure who to believe anymore. Here is a little background info.
12/09/2010 ACDF C5-6 C6-7
9/2/2011 Rear ended as a driver
I was pretty much better after my surgery with ROM and strength. Then I was rear ended and back at square one as far as ROM and strength was concerned. Then my hands and feet started getting cold and reddish to bluish. Then same affects to my toes and feet. Then the opposite occurred red and burning and swollen toes mainly and fingers and palms. It hurt to walk at times and I couldn't wear my rings and was losing strength in my hands. OSS wasn't sure what the situation was. He sent me to a vascular surgeon who said it was RSD. Then I did more research and needed to find someone to treat the issues. Found a physiatrist that is knowledgeable with RDS. Not so easy. Finally did and went to the appointment. He felt it wasn't RSD due to similar symptoms in both hands and feet. He said that it generally affects either the right or left but not both at the same time. He felt is was Raynauds. He feels an EMG is warranted and will try a Stellate Ganglion Nerve Block to see if that helps. Any thoughts about where to go or what to do would be helpful?
The nerve blocks can be helpful in both the treatment AND diagnosis of RSD (CRPS) so I would certainly consider doing that if I were you.
However, it's strange to me that they are having a difficult time differentiating between the Reynaud's and the CRPS. The syndrome and disease can co-exist together and often do. What a good doc should be doing is utilizing the diagnosis criteria for CRPS. Check out this link: http://emedicine.medscape.com/article/1145318-overview.
When I was diagnosed, my doctor took the temperature of various points of each of my limbs and looked to ensure I met the criteria for CRPS which is different from Reynaud's in many ways. For example, I have had Reynaud's my entire life and although I have suffered tingling and pain, it is NOTHING like the pain of CRPS (RSD) which puts a person through the roof (I didn't develop CRPS symptons until appx 8 years ago). If you don't want to hack your legs off, it's PROBABLY not CRPS. I have heard that some cases at the beginning are less severe on the pain scale, however, so it's still imperative that they correctly diagnose you ASAP. CRPS gets significantly harder to manage the longer you go without a diagnosis and appropriate treatment. Hit me up ANY time w/questions.
Good luck- take it easy!

 
Reply With Quote
Reply Reply




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



luca689 (5), ordway (1), Titchou (1), Marc46 (1), Darydien (1), cloraine (1), jenj770 (1), kadensmom (1), moonstone1981 (1)

Site Wide Totals

teteri66 (1164), MSJayhawk (997), Apollo123 (898), Titchou (833), janewhite1 (823), Gabriel (758), ladybud (745), sammy64 (666), midwest1 (665), BlueSkies14 (610)



All times are GMT -7. The time now is 01:59 PM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!