Originally Posted by frenchfri1003
I am totally confused and not sure who to believe anymore. Here is a little background info.
12/09/2010 ACDF C5-6 C6-7
9/2/2011 Rear ended as a driver
I was pretty much better after my surgery with ROM and strength. Then I was rear ended and back at square one as far as ROM and strength was concerned. Then my hands and feet started getting cold and reddish to bluish. Then same affects to my toes and feet. Then the opposite occurred red and burning and swollen toes mainly and fingers and palms. It hurt to walk at times and I couldn't wear my rings and was losing strength in my hands. OSS wasn't sure what the situation was. He sent me to a vascular surgeon who said it was RSD. Then I did more research and needed to find someone to treat the issues. Found a physiatrist that is knowledgeable with RDS. Not so easy. Finally did and went to the appointment. He felt it wasn't RSD due to similar symptoms in both hands and feet. He said that it generally affects either the right or left but not both at the same time. He felt is was Raynauds. He feels an EMG is warranted and will try a Stellate Ganglion Nerve Block to see if that helps. Any thoughts about where to go or what to do would be helpful?
The nerve blocks can be helpful in both the treatment AND diagnosis of RSD (CRPS) so I would certainly consider doing that if I were you.
However, it's strange to me that they are having a difficult time differentiating between the Reynaud's and the CRPS. The syndrome and disease can co-exist together and often do. What a good doc should be doing is utilizing the diagnosis criteria for CRPS. Check out this link: http://emedicine.medscape.com/article/1145318-overview.
When I was diagnosed, my doctor took the temperature of various points of each of my limbs and looked to ensure I met the criteria for CRPS which is different from Reynaud's in many ways. For example, I have had Reynaud's my entire life and although I have suffered tingling and pain, it is NOTHING like the pain of CRPS (RSD) which puts a person through the roof (I didn't develop CRPS symptons until appx 8 years ago). If you don't want to hack your legs off, it's PROBABLY not CRPS. I have heard that some cases at the beginning are less severe on the pain scale, however, so it's still imperative that they correctly diagnose you ASAP. CRPS gets significantly harder to manage the longer you go without a diagnosis and appropriate treatment. Hit me up ANY time w/questions.
Good luck- take it easy!