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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board
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Old 12-17-2006, 11:04 AM   #1
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MissVanessa HB User
Question Full recovery from RSD/ CRPS

If you have fully recovered from RSD/ CRPS, I would like to hear your story...
How bad did you have it to begin with, and what treatment (medication, PT, OT, etc) did you go through? How long did it take?

Can someone ever totally recover from RSD/ CRPS?

Thanks.

 
Old 12-17-2006, 10:05 PM   #2
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Re: Full recovery from RSD/ CRPS

Dear Miss Vanessa

I don't think any one here has had complete remission from RSD. I know of a lady who swears by it, and is one island away from me. She had it for 12 plus years. She uses a STS machine daily, as I do, but there is no way it has put me into remission . I don't think any of us would be here if we were in remission. Not sure what any one else has to say. Welcome to the boards. I hope you find what you are seeking. Aloha Skooze

 
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Old 12-17-2006, 10:46 PM   #3
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tame the flame HB User
Re: Full recovery from RSD/ CRPS

Skooze is right Miss Vanessa I doubt anyone can fully recover from RSD, it's our burden we'll carry with us for years if not the rest of our lives! Every time I get PT I only suffer more or even nerve blocks just set me back even more. But who knows there just maybe someone out there!! Welcome to the boards..you'll find lots of support here!
eunie

 
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Old 12-19-2006, 05:24 AM   #4
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Re: Full recovery from RSD/ CRPS

Since my diagnosis of RSD in October I have googled, yahooed and used every search engine I could find to get information on this unexplainable pain I'm going through.
Nowhere does it mention a cure....only remission.
The biggest battle is finding the right doctors, I'm still searching......
The best information I have found is right here...from people going through it. There are so many different treatments and everyone seems to do differently with each.......knowledge is power and it is good to feel a little less powerless with the knowledge and experience that is shared on this board.
Still holding out for a miracle for all of us.....
Jeanne

 
Old 12-19-2006, 08:39 PM   #5
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Re: Full recovery from RSD/ CRPS

Hi Jeanne and welcome to the boards

Yes you can google everything about RSD, and then one day this site pops up, and you've found your comfort zone. You will probably learn more here, than you will anywhere else, even if the rules are strict. Don't post email addresses, etc. read the posting rules, because you would hate to be banned.

Where is your RSD? and how did you get it? I guess the key to somewhat alleviate the symptoms are the right meds, a good and understanding doctor, an attorney, and a great support system (family or friends) all make the difference in our dealing with it. If you are in a wc case it could drag on for ever, and you'll get frustrated with their denials. I've tried about every treatment out there except for a SCS or a morphine pump. I was on vicoden for the first 4 years and was bedridden in pain, and never slept. I switched doctors to one who was familiar with RSD and my life turned around. Also I was given morphine, which got me back into the living. Seeing a shrink helps alot too, because they can offer suggestions from a different perspective. Make sure they deal with people with chronic pain. Avoid stress and ice. I really feel sorry for people who live where there is winter. I couldn't imagine the cold and going out in the weather. It gets cold in Maui too, but maybe it will be 57 degrees at night. To me that is when I hibernate, with a good book and a pot of hot soup or chilie. Everybody is different. It also helps to read the past posts, because you might find something there that connects with you. Just wanted to say hi and welcome, and remember no question is to stupid to ask. Aloha Skooze

 
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Old 12-20-2006, 07:23 AM   #6
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Re: Full recovery from RSD/ CRPS

Thanks Skooze
It's good to find a place with such good information and nice people
My RSD is in both my hands and traveling up my arms at times.....I had carpal tunnel surgery on both wrists back in July and that's when it all started.
You're right on the cold....I'm so grateful I don't live in NY anymore. I would have to stay in the whole winter. I'm lucky enough to be in NC where the winters are much milder
Right now I'm not on any meds, waiting to see a specialist in January who can hopefully lead me on the right path. The meds my ortho tried on me had way to many harsh side effects so was not worth having side effects and pain at same time.
I heard once that "Attitude determines Altitude" so that's where I put my focus now.....trying to surround myself with positive people and keeping my attitude in the right place....
I have read a lot of your posts and admire your attitude....thanks for being here for all of us.
Jeanne

 
Old 12-20-2006, 08:07 AM   #7
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22buddy HB User
Re: Full recovery from RSD/ CRPS

I will say that the cold is really a killer i live in Ohio and now that its cold I am dying. I have it full blown in both legs. I have all of the meds, morphine, Topomax muscle relaxers, Spinal cord stimulator and nothing helps a whole lot.
My husband bought me a hot tub and even that only gives relief when i am in it. I also have had two failed spinal fusions.

the key is to pray alot and learn to accept help from family and friends. I was really bad at that in the first few years. Now I know I have have no other choice pride goes out the window when you cant walk well.
Its really a mind game learning to accept that this is a long term thing and not something that is going to go away like other illnesses. It is hard to accept.Denial Denial Denial was were I stayed for about 1 year going from one doctor to another wanting another diagnosis so someone could fix me.
I am only 38 and still want to do so much with my life as I am sure we all do.

I wish you all the best and please rest when able over the next couple of weeks and try not to over do things with the holidays.

Lisa

 
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