I have a friend who has a multitude of autoimmune diseases, diabetes (insulin dep), etc. She also has RSD in both arms and probably one leg, which began last December (hospitalized and blood pressure cuff left on for days). She saw the pain specialist twice, takes Lyrica on and off and has only had a few weeks of home OT for one arm. At this point, she's decided to "live with current symptoms" and is not pursuing further care.
As a result of the autoimmune diseases, she has frequent aspiration pneumonia. One of her doctors now suggests placement of a feeding tube so she won't have to swallow food/liquids. The fact that I think other testing should be done before placement of the tube is one thing, but I'm also concerned about cutting on a person with RSD, and having a permanent "open wound" and how that will affect the RSD. My friend maintains the surgery can be done under local anesthetic but I've read that nerve blocks may need to be done to prevent a flare/spread.
I have heard that open wounds or other accidents can cause the rsd to relocate or have symptoms in those new areas. I'm not sure but I would be asking my doctor the likely-hood of that happening.
I've also read that people with autoimmune problems can have flare ups more with rsd because their bodies are trying to fight off so many different things that something has to be put on the back burner so to speak.
I wish I could be more help. Sounds like your friend could really use a break from her body attacking her like this. I'd ask about the blocks. I have heard of the same thing in regards to it helping not spread when doing a surgery. I wish your friend all the luck in the world. Hopefully if she does go through with the surgery that it doesn't create more problems with the rsd. I guess she has to out way which would be worse for her. Tough choice to have to make.
Has her doctors said anything about what could happen with the rsd? Does she see a rsd specialist. Maybe there is something they could do to prevent it if she has to have the surgery.
I really wish I could be more help.
Take care and stay warm,
Harmony, the nerve blocks you may be think of are sympathetic nerve blocks. I had about the last one done in Michigan before the AMA decided it was inhumane. I was cut diagonal across my abdomen with a 7.5 inch cut, my insides were moved over so that they could reach the interior of the spine, where the nerve is located, they need you awake so they can tell what nerve is where when they cut it. Once it's cut, it is all over for any repair, and with very little success, it was finally abandoned. The other blocks, which i receive every month are a medicine that is injected near the spine, it is done with a light local and they use Versed to calm the patient. Especially with an immune problem she must not be cut on for that type of procedure. Actually there are doctors being sued for performing sympathectomys now. Please look into this, never take one persons word for it!
I am not to sure about your friend's surgery. I think your friend is in denial. It is very sad because she is probably shortening her life span.
I am getting ready to have my gallbladder removed. From my research, this is one of the more sucessful surgery for RSDers. My PM has sent my surgeon instruction on what precautions he should take for my surgery.