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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board
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Old 02-23-2010, 10:24 AM   #1
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hdladyred HB User
Has anyone out there tried functional rehabilitation?

Hi,
I've done about everything else other than a pump and lidocaine/ketamine infusions. I don't think my WC insurance will approve anything else for me until I go through functional rehabilitation. I was all pro about going even though I knew it was going to be the hardest thing I had ever done ... until ... I went through the interview process to see if I was a candidate. They approved me but I'm having a very hard time making myself start the program. My insurance approved it but I believe it is only because they plan on taking me off of ALL of my medications during the program and want to induce flares! Now I'm terrified to go. I had spoken with my PM doc who said I would be staying on my pain medications (and this program is part of his office) but then the physical therapist and MD that are "over" the program told me about the meds and flare. I believe that some pain can be good - and most of us are learning how to live with it - but I'm at 3 years with RSD and can't imagine how I will survive without the meds. Does anyone out there have any thoughts, suggestions or experience with Functional Rehab?

Thanks in advance for your help.

 
Old 02-25-2010, 06:07 AM   #2
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Re: Has anyone out there tried functional rehabilitation?

Havent heard of it but why would anyone want to cause a flare? Do these Drs. know a flare can cause spread of CRPS? I have CRPS in all 4 limbs about as long as you. I also was on narcotics until a specialist said i was physically dependent on narcotics. No way! I hate narcotics. So my Dr agreed to wean me off slowly as he increased my other meds(he also added naprosyn for pain). I also started psych for breathing and relaxation techniques and hot pool therapy(just walking in hot pool). It worked!! But it must be done slowly because narcotics can cause withdraw symptoms which can cause CRPS to flare. I remember reading people that were not on narcotics and i use to think-they cant have the pain i have. And at the time they probably didnt but i always wondered-how will i know if my CRPS has calmed down enough to come off narcotics if i dont try. I always use to worry what happens if my body gets use to narcotics and nothing helps. Now i know if the pain increases i have something to fall back on. Remember- dont beat yourself up if you need narcotics. Our pain is real and needs to be controlled. You can always try again later. Hugs. D

 
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