I wanted to share some things with people here. 1st off, if you can see Dr. Prager at UCLA, GO! I have been waiting, since my case is through Work Comp and it has been a pain, no pun intended here!
I finally got to go yesterday. He has a huge success rate on helping people out. He is a pain management specialist, specializing in the SCS and CRPS!
So, here it goes:
YES- I do officially have CRPS.
BUT...there are things I can do to get my life back.
I am 31, almost 32...and I never thought I was going to be able to get my life back. When you hear a DR say "there is hope", the clouds disappear!
It is a 2 way street. Today I will go to the 99 cents store, and get 2 short buckets to fill water into.
Here is the beginning of my treatment.
If you want to read my story, look for my earlier post, but basically here it is.
A fire extinguisher fell on my foot, as I was a restaurant manager- but no on the top, on the side (my right) on July 21st, 2009. I had lots of PT, had 7 nerve blocks, and have had constant pain, only getting worse. Heat at night, pain resonating up my leg, bad lower back pain since my gait is off.
I don't do well on meds, so all the pain meds, don't work and make me sick.
Dr. Prager told me this:
I immediately started on Cymbalta 5mg/day, increasing up to 60 at my own discretion.
30 minutes a day I have to do this.
3/day morning, during the day, and before I go to bed...
1 bucket of warm water, 1 bucket of cool water,
stick my foot in one, then the other back and forth for 5 minutes...and gradually increase the temperatures over a couple of weeks.
take 10 textures around my home:
a piece of fabric, my dog's tail, my blanket, a cotten swab, etc...and brush my foot - 3 times a day!
That is it!!!
This is re-conditioning the nerves, and he has been 100% or 99% successful with this.
Oh, and since I haven't been able to exercise, and before this happened I was very active, hiking/tennis, walking my dog, etc...I asked if my pool was good, and since it is summer...he said YES...go by the aquajogger...so I am going to do that as well.
As far as the SCS...he told me in the future, we can talk about that, and probably we will be leaning towards it...but 1st this!
I have to get approved now from the work comp ins. to go see the chiropractor, the pain therapist, and he does want to do 1 nerve block, as he also specializes in this as well!!!
HE IS FANTASTIC!
Sorry so detailed, but I do want to help others, I have been very very depressed...and I know it can be really hard dealing with any chronic condition. Trust me, this isn't the only one I have been blessed with