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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board
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Old 06-17-2010, 09:34 AM   #1
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Fantastic Doctor Visit at UCLA



I wanted to share some things with people here. 1st off, if you can see Dr. Prager at UCLA, GO! I have been waiting, since my case is through Work Comp and it has been a pain, no pun intended here!

I finally got to go yesterday. He has a huge success rate on helping people out. He is a pain management specialist, specializing in the SCS and CRPS!

So, here it goes:

YES- I do officially have CRPS.
BUT...there are things I can do to get my life back.

I am 31, almost 32...and I never thought I was going to be able to get my life back. When you hear a DR say "there is hope", the clouds disappear!

It is a 2 way street. Today I will go to the 99 cents store, and get 2 short buckets to fill water into.

Here is the beginning of my treatment.

If you want to read my story, look for my earlier post, but basically here it is.
A fire extinguisher fell on my foot, as I was a restaurant manager- but no on the top, on the side (my right) on July 21st, 2009. I had lots of PT, had 7 nerve blocks, and have had constant pain, only getting worse. Heat at night, pain resonating up my leg, bad lower back pain since my gait is off.

I don't do well on meds, so all the pain meds, don't work and make me sick.

Dr. Prager told me this:

I immediately started on Cymbalta 5mg/day, increasing up to 60 at my own discretion.

30 minutes a day I have to do this.

3/day morning, during the day, and before I go to bed...
1 bucket of warm water, 1 bucket of cool water,
stick my foot in one, then the other back and forth for 5 minutes...and gradually increase the temperatures over a couple of weeks.

Lastly,
take 10 textures around my home:
a piece of fabric, my dog's tail, my blanket, a cotten swab, etc...and brush my foot - 3 times a day!

That is it!!!

This is re-conditioning the nerves, and he has been 100% or 99% successful with this.

Oh, and since I haven't been able to exercise, and before this happened I was very active, hiking/tennis, walking my dog, etc...I asked if my pool was good, and since it is summer...he said YES...go by the aquajogger...so I am going to do that as well.

As far as the SCS...he told me in the future, we can talk about that, and probably we will be leaning towards it...but 1st this!

I have to get approved now from the work comp ins. to go see the chiropractor, the pain therapist, and he does want to do 1 nerve block, as he also specializes in this as well!!!

HE IS FANTASTIC!

Sorry so detailed, but I do want to help others, I have been very very depressed...and I know it can be really hard dealing with any chronic condition. Trust me, this isn't the only one I have been blessed with

 
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Old 07-11-2010, 12:12 AM   #2
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Re: Fantastic Doctor Visit at UCLA

He has a great reputaion but he only takes work comp and no insurance so you have to pay cash. My daughter has been wanting to see him but we don't have that kind of cash.
I hope his methods help you and you can get your life back.
Peace,
Lorie
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Old 07-12-2010, 07:58 AM   #3
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chilimaiden HB User
Re: Fantastic Doctor Visit at UCLA

Quote:
Originally Posted by RockOutRSDMom View Post
He has a great reputaion but he only takes work comp and no insurance so you have to pay cash. My daughter has been wanting to see him but we don't have that kind of cash.
I hope his methods help you and you can get your life back.
Peace,
Lorie
O know....I didn't know that he doesn't take insurance Mine is a work comp case, which is strange because it was such a hard time to get there through work comp considering I am suing...so I figured he would only take insurance?

Did you ask Mark (his secretary) if they have someone who works with people who cannot afford him?

Best of luck to you...

 
Old 07-15-2010, 12:00 AM   #4
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Re: Fantastic Doctor Visit at UCLA

I'm so glad you found someone who has given you hope and some practical exercises to improve your situation. My CRPS is in my left hand and arm. I have used several similar techniques and added a few of my own. I tap out the beat to music using both hands ..it is helping retrain my brain. Also, since I can't crochet or knit mucxh, I have begun weaving. Using both arms in this process is really making a difference. I am still getting nerve blocks on a fairly regular basis .. as long as they work, I'll take them so I can have at least some relatively pain free time. Good luck with your physical therapy. toughkid

 
Old 07-19-2010, 08:45 AM   #5
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chilimaiden HB User
Re: Fantastic Doctor Visit at UCLA

WOW,
that sounds amazing. Since I posted, I stopped doing the water (cold and hot), only because I was in so much pain. I am going to start again, but perhaps it was the combination of that and the swimming? All I know is I was having bad, increased pain?

Great to hear that it is helping you!

Keep me posted if you can.

In my prayers,
Mindy

 
Old 07-19-2010, 11:50 AM   #6
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Posts: 38
toughkid HB User
Re: Fantastic Doctor Visit at UCLA

Have you tried using uncooked rice? For your foot, you can fill up a plastic container with the rice and try putting your foot in and moving it around a little . It helps get your skin used to having some texture stimulation... I tried every texture I could find..even just lightly pulling a towel over your skin. Good luck.. keep us posted..Lynne aka toughkid

 
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