I have CRPS throughout my right leg as well as fibromyalgia. I experience constant severe pain as well as muscle spasms around the trigger points throughout my body (the spasms are not always painful but are sometimes very much so).
I am constantly exhausted, anxious and depressed due to the continuous severe pain. I use crutches or a cane to walk when I am able to walk at all.When I am in a "flare" which is probably 70% of the time, I experience paresis, weakness/instability, sensitivity to light and sound.
What I am wondering is: Which of these are symptoms of fibro and which of the RSD? I feel that it matters because the RSD is clearly more progressive in its attacks on my leg and I have been informed that fibro is not. If the shooting pains in my good leg are random attacks of fibro as opposed to the onset of RSD in my good leg, I would have some serious peace of mind.
Thank you for your time.
I should mention that I am receiving treatment from an excellent PM doctor who is a specialist in CRPS as well as fibro and yet he seeks the same answers I do on a case by case basis. I felt that with your collective commentary I may have a better answer than the current minimal studies provide.
The following user gives a hug of support to sophia554: gspence (07-14-2011)
I haven't been dx'd with fibro so I can't comment on that, but I do have what I'm feeling as constant muscle spasms in my rsd limb and then on top of that more intense ones in certain areas of it. I am also constantly exhausted, stressed, and depressed due to pain and lack of sleep. My kids said that I have become more mean, which I take means I have lost much of the patience I used to have.
Sound drives me nuts, especially the vibrations. I find that things like live music is painful.
I'm still pretty new to this as well, but I know that what I feel in that leg I don't feel in the other and I have never been this tired, depressed, or agitated in all my life. Usually I was known as the patient, always happy and smiling one. I still try to fake it, but it is getting harder and harder.
Last edited by K_Lana; 07-15-2011 at 04:22 AM.
The following user gives a hug of support to K_Lana: gspence (07-16-2011)
Thanks for the insight, guys- I think even just knowing that other people have the same "which disease is this" conundrum is a relief.
Last week my flare got so bad that any movement in my ankle joint caused a shriek inducing pain from hell, my leg had turned white, and the sides of my ankle joint were paralyzed. After consulting my gp (left msg for PM), I headed to the ER just in case of blood clots. It was nothing but it still hasn't gone away and I'm going in to see my PM in his next available.