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Old 07-27-2011, 10:50 AM   #1
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Cymbalta for CRPS?

Hello all,

Anyone have any luck with Cymbalta? My doctor suggested I try it.

I'm on Gabapentin and it's making me really mentally foggy... can't remember what I'm saying halfway through and have difficulty finding the word.

Share your Cymbalta experience with a CRPS newbie :/

....

Initial injury (stress fracture in third metatarsal) occurred in March 2011. Diagnosed with CRPS in May. Had first nerve block on June 28th and am getting a second one in a week. Had very positive response to first one. Titrating up on Gabapentin, at 400mg 3xs/day now. Responding to treatment so far. Hoping for remission.

 
Old 08-02-2011, 02:37 PM   #2
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Re: Cymbalta for CRPS?

Quote:
Originally Posted by lolobi View Post
Hello all,

Anyone have any luck with Cymbalta? My doctor suggested I try it.

I'm on Gabapentin and it's making me really mentally foggy... can't remember what I'm saying halfway through and have difficulty finding the word.

Share your Cymbalta experience with a CRPS newbie :/

....

Initial injury (stress fracture in third metatarsal) occurred in March 2011. Diagnosed with CRPS in May. Had first nerve block on June 28th and am getting a second one in a week. Had very positive response to first one. Titrating up on Gabapentin, at 400mg 3xs/day now. Responding to treatment so far. Hoping for remission.
Hi there,


I do take Cymbalta for CRPS in my hands. It is really hard to tell if it works bcuz I also take Topamax for them as well. I tried Gabapentin twice and both times I only took one 300 mg at bedt time and felt like a truck hit me in the morning. I did not want to get out of bed and just wanted to sleep.....so that is why I switched to Topamax. I started with the Cymbalta awhile ago by itself..I do think it helped, but not a ton by itself. I take 60 mg 2x a day. and 100 mg of Topamax 2x day (when I remember the 2nd dose) I also had nerve blocks. Just had my 8th one. I had a series of 6 in a month and they helped take the burning feeling away, which helped. I just had 2 and am not having any more unless I need them in the future. Dislike needles in my neck! I have had 10 sugeries between both hands!

 
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Old 08-02-2011, 07:09 PM   #3
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Re: Cymbalta for CRPS?

My PM doctor just started me on Cymbalta. I'm up to 60mg once a day. I have been taking gabapentin, 600 mg 4 x a day, which has helped the nerve pain a lot. However I am not sure how the Cymbalta is working on the pain but it has help my mental attitude some. I also take other meds and will get my fourth nerve block next week. I go to aquatic pt. All of the has helped me be able to walk on my foot and decrease the pain. I am now able to wear socks and a MJ type shoe. I was just wearing sandals.

 
Old 08-06-2011, 06:17 PM   #4
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Re: Cymbalta for CRPS?

wow that is quik treatment your odds are good well better than most,,cymbalta . no personal experience but know alot with good results.. neurontin huh me too i couldnt remember my social , phn # or anything ..my kids called me ten second tom..
i am taking amrix percicept and amitrypilene.. was recently taken off of naprelan gabapentin(neuronti) vicodin, furicept with codein.. Im awake now and the amitrypilene is helping with sesitivity.. compressions stockings for swelling.... good luck to you sounds as if your drs are on the ball

 
Old 11-20-2011, 09:53 PM   #5
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Re: Cymbalta for CRPS?

Just wanted to let y'all know that I am currently on Cymbalta and it has been a GODSEND. I would def suggest it. Still on 1800mg of gabapentin (aka morontin), but the addition of Cymbalta has me feeling great! Adjusting to the drug was ROUGH. I titrated up to 20mg SUPER slowly, and still felt terrible (skin crawling, couldn't sleep, jittery, ugh, stomach ache, no appetite, etc), but one day I woke up and it was like a lightbulb went on and my body just stopped fighting the drug. THe pain reduced quickly after starting, but the side effects took awhile longer, so stick with it if you're having bad luck at first. It has been worth it for me.

 
Old 11-21-2011, 04:19 PM   #6
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Re: Cymbalta for CRPS?

How long have you been on the gabapentin? I found that the grogginess faded away after a couple of months. It was incredibly irritating but FAR better than letting this disease progress. My CRPS was diagnosed late late late (7 years after injury) and so I really encourage anyone who has had an early diagnosis to be treated with aggression. Acetyl L-Carnatine is also potentially helpful in the repair of nerve damage/nerve pain and is an over the counter amino acid. Good luck!

 
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Old 11-21-2011, 04:26 PM   #7
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Re: Cymbalta for CRPS?

I've been on it since July, up to my 1800mg since August. The grogginess is better, but the brain fog is hard (forgetting words, general spaciness).

To be honest I don't know what agressive treatment means anymore... I am able to do a lot more than I used to, but it is slowwwww going. I am taking NAC. Any other tips? I feel like if my foot were my hand it would be so much easier, but recovering with weight bearing as a part of the deal makes it hard hard hard.

 
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Old 11-23-2011, 05:06 AM   #8
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Smile Re: Cymbalta for CRPS?

Man, it's such a hard thing to wrap your head around aggressive treatment of a chronic illness, I know...
I think I felt like I WAS treating aggressively w/my PM using antidepressants, NSAIDS, and the gabapentin but my pain still climbed and I could barely move. Light, sound, everything was an instigator for further pain.
I found a new GP hoping that explaining my symptoms holistically as opposed to just describing my CRPS pain would better help me track my health overall and be able to make some differences. For me, that is what has been the MOST helpful so far. I found a very intelligent but very open minded doctor who deals with pain management on a regular basis but has the time and resources of a private practice as opposed to a large hospital system. Now I still see my PM every 4-6 weeks but I am in contact with my GP multiple times per week while she treats each of my individual symptoms with a combination of both pharmaceutical and alternative therapies. A GP or PM in a private practice just has more TIME and they are able to put their passion into their patients.

My current medications and therapies that have helped (in case any of these can help you) are:

gabapentin 800 twice/day and 1600 at night
50mg seroquel to sleep (prior to this level of tranq I was waking up due to pain every half hour)
20 diazapam 3 times/day and as needed for muscle spasms (huge helper)
500mg Acety L-Carnatine
5 days of kertoralac injections then 5 days off (torridol- awesome NSAID)
5 days of meloxicam then 5 days off when on keterolac
MS Contin extended release varying qtys at this point
Tennis ball trigger point therapy
massage therapy
Cognitive behavioral therapy w/a great psych


I think the biggest thing that makes the treatment "aggressive" is that you don't settle for living life incapacitated and find the right professionals who can help you become as functional as possible.

 
Old 11-23-2011, 07:57 AM   #9
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Re: Cymbalta for CRPS?

Quote:
Originally Posted by lolobi View Post
I've been on it since July, up to my 1800mg since August. The grogginess is better, but the brain fog is hard (forgetting words, general spaciness).

To be honest I don't know what agressive treatment means anymore... I am able to do a lot more than I used to, but it is slowwwww going. I am taking NAC. Any other tips? I feel like if my foot were my hand it would be so much easier, but recovering with weight bearing as a part of the deal makes it hard hard hard.
Not here to minimize your pain or jump in on your conversation, but I have this awful thing in both of my hands and it is no picnic. So trading it from the foot to the hands may sound good but coming from this experience.....I think the only place it belongs is GONE! I know, I don't have it in my foot, so I do not know what it feels like to put weight on it, but I sure do know what it feels like to try to wipe my behind, zipper my pants, tie my shoe, pull up my underwear, hook my bra, lift a fork (my husband or family has to cut my meat for me), try to sign a check, brush my teeth etc. Everyday normal functions that are so easy and never thought of, have become a "maybe I can't today, maybe if I do today, the rest of the day I will suffer...."

I am sure you experience the same type of things with it in your foot and I am sorry that you have to have this monster as well. There is no good place to have it, ever. I guess I just wanted to say if you want to wish it someplace other than your foot, wish it away!!

 
Old 11-28-2011, 10:37 PM   #10
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Re: Cymbalta for CRPS?

I guess the grass is always greener! I have the beast in my right arm and I kept thinking I wish it was just my right foot, then at least I know that once again I can hold down a fulltime job. I am very glad these questions, just started Cymbalta and generic Neurotin 30 days ago, my fire went out within 48 hours and even the orginal injury of tendonitis started feeling better, not completely healed but better my constant prayer is please don't let me become a immune to my medications. I have a dosage increase every 4 days till I reach 2500 milligrams (?) I am not sure about everyone but I had a deep coldness that covered my entire body...even in summer when it was 110 here and I literally felt ill...along with pain. Mine was found early...so I feel blessed to have a Ortho who listened to my complaints and knew me well enough to know they weren't normal or made up...I did feel weird when I finally spilled how bad things were...why do we doubt our own pain? Also my bad heartburn went away! I can't drive right now, and sleep a lot...and have weird dreams...but at least I am sleeping unlike before the diagnosis when I was up every 3 hours. Hugs to you all...and hope...I wish you all hope.

 
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Old 12-04-2011, 08:15 PM   #11
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Re: Cymbalta for CRPS?

god bless, coffee. I wish all of us could find that bit of peace in this. I sure am glad that you can find relief with your present treatment.. this is the type of news that brings us all a little hope... good luck in your future .

 
Old 03-24-2012, 08:21 PM   #12
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Smile Re: Cymbalta for CRPS?

Hi Pamela

I have just joined this forum and saw your post. I was diagnosed in September last year and have had several nerve blocks, also on Gabapentin. I was really struggling with the side effects so my Dr decreased my dose but eventually the pain came back. Anyway last week I was commenced on Cymbalta. It's been 7 days now and I have noticed an improvement already. I am experiencing some nasty side effects such as bad dizziness, confusion, unable to drive etc but my specialist assured me these will pass.

Hope you have a good response from them.

Cheers
Reefgirl.

 
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