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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board
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Old 08-15-2011, 08:29 PM   #1
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Need info on radio freq. nerve ablation

Hey everyone, got a favor to ask of you kind souls. I'm having lumbar radio nerve ablation done on Wednesday, and I have read and read and searched and searched, but I cannot seem to find the answers I'm looking for.

First, I read another thread about this and Sandy325 stated that this procedure is no longer recommended for treatment of RSD, and I was wondering if any of you (or Sandy if you're out there) could give me a link or tell me specifically what to search for?

Second, while taking what Sandy said into consideration, I then wonder if anyone knows how likely this is to work for me and how long does it usually take to work? I realize that no one will know for sure, but maybe somebody out there has some statistical information that could help me.

I'm really, really nervous about doing this procedure. MY PM and I both wanted to opt for the SCS but insurance won't go for it, so rather than sit around and only take meds I decided that I should try this since the first block gave me a little relief. That was the block where they used marcaine, and it hurt like crazy and it basically reset my pain tolerance (which sucked and made me regret doing it) but it did give me relief for a few days.

I appreciate any help you folks can give me, and I know this is kind of short notice, I'm seriously second guessing myself right now, lol.

Tim

 
Old 08-16-2011, 07:11 PM   #2
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Re: Need info on radio freq. nerve ablation

My PM recommended this procedure to me. I really thought about it and even had it scheduled. I got a second to fifth opinion. =) I found two PM's who I really trust and who treated more CRPS patients. They both told me NOT to do it. They had found in their patients that it really didn't help and even made things worse. It can also cause some side effects of its own that aren't great. They both recommend that I do a trial for the SCS. This is what I am seriously considering now...just trying to decide who I am going to have do it.

That said about the ablation....someone at the support group I go to here in Phoenix has had it done and it worked great for her.

So, it is a chance to take. It is not one I am comfortable with personally. I have given meds a good try and now am going the other route (as long as insurance approves).

Good luck.
Janel

 
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ablation, rsd questions, sympathetic nerve block; rsd; crps; new diagnosis



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