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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board
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Old 08-23-2011, 12:00 PM   #1
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kbsv HB User
need advice on possible RSD diagnosis

Hi everyone- I have been lurking here for a few days. I wanted your opinion on my case and some guidance if possible:
I had a minor ankle sprain 4 months ago. Sprain never recovered after PT. Had 2 negative MRIs. After 6 weeks my calf and knee began to hurt- a burning pain but it also felt swollen inside. Had ankle arthroscopic surgery 3 weeks ago. Ankle is doing great. But burning pain up the calf, into the knee and up into the thigh is worse.
There is NO swelling, no sensitivity, no color changes, no temperature changes no changes to hair or nail growth. Nothing hurts when I wake up. It only starts to burn once I have walked around for a bit.
My podiatrist says it's not RSD and is sending me for a nerve conduction test today. He thinks it is sciatica or a nerve issue going down the leg.
I wanted your opinion on how hard to press for a referral to someone who can rule out RSD. And also, who should I go to? A neurologist? A Pain specialist?
I live in Northern California. Any recommendations would be so great.- I am panicking!
Thank YOU all! You sound like an amazing group of survivors.

 
Old 08-23-2011, 12:49 PM   #2
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JuJu Burd HB User
Re: need advice on possible RSD diagnosis

Quote:
Originally Posted by kbsv View Post
Hi everyone- I have been lurking here for a few days. I wanted your opinion on my case and some guidance if possible:
I had a minor ankle sprain 4 months ago. Sprain never recovered after PT. Had 2 negative MRIs. After 6 weeks my calf and knee began to hurt- a burning pain but it also felt swollen inside. Had ankle arthroscopic surgery 3 weeks ago. Ankle is doing great. But burning pain up the calf, into the knee and up into the thigh is worse.
There is NO swelling, no sensitivity, no color changes, no temperature changes no changes to hair or nail growth. Nothing hurts when I wake up. It only starts to burn once I have walked around for a bit.
My podiatrist says it's not RSD and is sending me for a nerve conduction test today. He thinks it is sciatica or a nerve issue going down the leg.
I wanted your opinion on how hard to press for a referral to someone who can rule out RSD. And also, who should I go to? A neurologist? A Pain specialist?
I live in Northern California. Any recommendations would be so great.- I am panicking!
Thank YOU all! You sound like an amazing group of survivors.
I guess I was "lucky" to have all the characteristics of RSD when I had surgery to repair my shattered wrist 1 yr. ago. I had 3 nerve blocks which gave me pain relief but I am left with a wrist & hand that don't work. I would push to see a pain management specialist. I've learned in the year since my accident that the symptoms related to RSD don't have to be present to be diagnosed. Hope this helps. Be vigilant about your care!
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Old 08-23-2011, 09:58 PM   #3
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Join Date: May 2011
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6kidz HB User
Re: need advice on possible RSD diagnosis

I would agree on the pain specialist. I went from podiatrist to podiatrist until one suspected RSD. I had burning and pain but not swelling or color change. I eventually got the color change and the pain and burning spread from the right foot to the left and then started up my legs. By the time I got the blocks (they ruled out auto-immune and nutritional issues but did suspect back issues) the burning was just below my knees, I had cold sensitivity and general sensitivity (coldn't wear shoes or socks). I was a mess, I wasn't sleeping and was depressed. The less I did, the worse I got! Anyway, I have been lucky that since the blocks the burning is much better and only happens about 3-4 times a week rather than everyday..a LOT. I also can wear shoes and socks (which is good since I still have issues with cold). My pain is still bad though the lyrica and desipramine (anti-depressant) help some.

Anyway, the symptoms can be all over the place. I have learned that it is up to you to take charge of your healthcare. Be pro-active. If something doesn't feel right, follow that feeling! Also, just because you have started with one doctor, you don't have to stay with them. Don't be afraid of a second, third, fourth, etc opinion. Good luck! Pain management dr's are usually more familiar with RSD since they tend to see it more. I would push to see one.

 
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