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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board
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Old 03-24-2012, 08:43 PM   #1
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Reefgirl HB User
New CRPS person

Hello everyone.

I have just joined this forum to see if there are other people like me. I was diagnosed in October 2011 with CRPS following a fractured right radial head in August. I have had several blocks done and have commenced on Gabapentin and Cymbalta. I go to hydrotherapy and see a specialist Hand Therapist.

I guess I want to know if this pain will get better? Has anyone completely recovered or will this now be my life.

Would love to hear from you.

Cheers
xx

 
Old 03-26-2012, 07:33 AM   #2
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Re: New CRPS person

Hi, my son seems pretty much better after getting to the point where he was using a wheelchair off and on and although some people will say it's just a remission, I can't see it recurring. He's a bit bendy, so we are a bit careful about protecting ligaments and his muscles are weaker than they were, so we're building them up. But yes, I'd say you can get better. The most important hting is to educate yourself, be your own advocate, realise that the medical profession are not experts in this and, personally something i think really is important is to create an e-mail paper trail of discussions with doctors etc -....'I'm just writing to confirm I understood our appointment .... could you let me know that's right.... or ...my view is ... because ... could you let me know your opinion ... They take you much more seriously because these can be copied and sent on. It also means that you don't have to re-explain everything all over again with the next professional - you just forward on the correspondence so far, before the appointment.

 
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Old 03-26-2012, 11:25 PM   #3
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Re: New CRPS person

You can go into long term remisson certainly within the first 3 months of onset, not diagnosis, some have within the first year but it's generally acceppted by doctors tat atr 1 year it is highly unlikely. Some people do clim to be cured butI have known people who have had it flare up after 10years withot prolems. he slightest traume can cause it to flare or spread Mine was caused by he use of a sensitivity pin 4is outside the affected area. Specialist saidI am the most hypersensitive person he has treted in 20 years
Do not allow the therapst to be aggressive, it should be intensive but gentle,no ice no hot and cold water contrast therapy all f these hve cause flaes or spreads in sme suffers but not all. They are not worth the risk of finding out too late that you are one ofthose people

 
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Old 03-27-2012, 08:57 AM   #4
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Re: New CRPS person

[QUOTE=Reefgirl;4949902]Hello everyone.

I have just joined this forum to see if there are other people like me. I was diagnosed in October 2011 with CRPS following a fractured right radial head in August. I have had several blocks done and have commenced on Gabapentin and Cymbalta. I go to hydrotherapy and see a specialist Hand Therapist.

I guess I want to know if this pain will get better? Has anyone completely recovered or will this now be my life.

Would love to hear from you.

Cheers
xx CRPS is a life long condition,I've been dealing with my crps for 4 years now and theres know improvement,just more pain over the years.You have to educate yourself on crps,it affect people differently what may work for you may not work for others.Pain management,meds, and therapy may help,to manage the pain but you yourself have to understand it and asked as many questions as possible to the docoters,if they dont have knowledge on crps see a different one. Hope you get better.

 
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