Re: New CRPS person
Hi, my son seems pretty much better after getting to the point where he was using a wheelchair off and on and although some people will say it's just a remission, I can't see it recurring. He's a bit bendy, so we are a bit careful about protecting ligaments and his muscles are weaker than they were, so we're building them up. But yes, I'd say you can get better. The most important hting is to educate yourself, be your own advocate, realise that the medical profession are not experts in this and, personally something i think really is important is to create an e-mail paper trail of discussions with doctors etc -....'I'm just writing to confirm I understood our appointment .... could you let me know that's right.... or ...my view is ... because ... could you let me know your opinion ... They take you much more seriously because these can be copied and sent on. It also means that you don't have to re-explain everything all over again with the next professional - you just forward on the correspondence so far, before the appointment.