Got a nasty feeling that means something that is extremey cold. Ice according to most websites is the worst posible treatment for RSD, Hot and Cold water contrast is the second, they had me doing it 3 times a day for 7 weeks. Result white spots and lumps in my veins and the main one instead of giing straight up the back of my hand now oes a dogleg.
I do have CRPS in my entire right leg and foot, just like you. My physical therapist has been using biofreeze while doing desensitization and deep tissue massage. She first thought it would be too painful to me but decided to give it a try. She's been using it now for about four months now. I do like the feeling of it.
I know I am digging up an older thread, but Biofreeze is just a topical anesthetic like Icyhot, etc.
My PT used it also mixed with whatever they used for massage. I really liked it. I will get some eventually. It's pretty strong so I think it might be best for us if it's diluted. At least for me it was.
I never tried it, but the topical Ketamine lotion worked for me better than anything else I tried. I considered Biofreeze but I dont do cold well. Tried icy hot once...very bad idea - couldn't wash it off fast enough!
__________________ I am not a Doctor - Please DO NOT construe anything above as medical advice. Everything I post is from my own personal research and/or experiences.
I did buy some Biofreeze. I thought I would give it a go since my physical therapist used it and recommended it. I figured why not try it?
Well, I don't even feel it on my affected leg. This stuff is STRONG, but I don't feel it.
When my pain management doctor was making the diagnosis of RSD, he got an alcohol wipe and wiped it on my good leg--I could feel that it was cold, like alcohol. When he put it on my affected leg, I didn't feel its effects. I didn't realize it but that is one way he was sure of the diagnosis.
When my leg isn't super bad, I can feel it a little, but when it's really hurting, I can't tell I've put it on.
I go to PT often and for years. they tried the bio freeze on me stating that the other RSD patients they had liked the results..mind you they only had 3 other rsd patients. the second they put it on I wanted it off. it is alot like icy hot or ben gay . all wich i tried on RSD affected areas. (this is my experience) any temperature difference ofm ore than a couple of degrees causes extreme pain. cold is always way worse for me . though it was in the past two days I read a report that Ice is a proven treatment in RSD.. OK this is a big issue with man people (MYSELF INCLUDED) I mention this so every one who reads this knows how wildly different each case is . so even with the compiled experiences on this site and others like it <<YOU NEVER REALLY KNOW>> I hope this helps in perspective .. good luck
I am always astounded at the differences in all of our symptoms. No wonder doctor have such a problem getting the diagnosis and treatments right.
TRUE.. but I also see that little is being done in the grand scope of things to understand it.. just treating the symptom (pain) isnt the permanent answer. and this beast with its many names and faces should have more dr,s aware and researching.(i think so any way)
The biggest problem is there is no sharing of info, I saw a speciailist on Monday before they decide if they will amputate my arm while awake which has been done succesfully 6 times over your side. I told him that the doctors doing this may have discovered a cure and not know it. He disagreed with everything I told him saying he was only interested in what happened in the UK. I know the same happens between states on your side of the water.
Until there is international sharing of info, trials, and research we don't stand a chance
Thats funny because when you first started your quote I thought you meant between dr,s not countries.. as Most of my dr,s arent sharing info as they did in the beginning and they all believe they are the best and the brightest. I agree with you that there should be a recognized world congregation of doctors that shares diagnosis,s treatment options and clinical research as well as all research done. this for the betterment of the world and the community of the worlds population. What a dream huh?
Last edited by Administrator; 10-11-2012 at 01:50 AM.
One of the things I am trying to force the UK Goverment to do is creata a post of Internet Research and Liason Officer. To liase with specialists and clinics around the world, to collect, collate and diseminate every medical paper, research project and clinical trial. Just maybe the dream could come true.