Just want a normal life back..
Hello, my name is Crystal and I'm a 23 year old suffering from RSD. It began two years ago when I fell and broke my ankle. A few months following the break I had 3 surgeries and we thought that things would start to get better from there, but as it turned out that was only the beginning. After months of sleepless nights due to intense pain I was referred to a physiatrist in the same clinic as my orthos. As soon as I slid my cam-boot off and he saw my purple foot with it's scaley, shiny skin and felt the sweat coming off of it he instantly knew I had RSD. We immediately began what he called "the cocktail";
-Cymbalta 60mg 2x/day
-Lyrica 100mg 3x/day
-Percocet 10-325 every 4 hours
Along with all the medicine I started a series of lower lumbar sympathetic nerve blocks. I started off with 4 of them, and they calmed down some of the symptoms but there was still unresolved issues. Shortly after the blocks I under went another surgery after being diagnosed with tarsal tunnel syndrome. The nerves in the tarsal tunnel were decompressed and wrapped with a synthetic tissue, but unfortunately this caused my RSD to flare back up with a vengence. I than went through 3 more nerve blocks to try and tame it but it was too far gone at that point. We continued my meds and started looking for other methods to get the pain under control, contrast baths at PT, water walking in PT, deep tissue massages but nothing was working. I had a few more surgeries done before we looked into a Spinal Cord Stimulator more seriously.
And that's where I'm at now. I had the SCS implated 4 days ago, and now I'm trying to figure out is a normal life in the cards for me? I could go by what the doctors tell me but they haven't had the implant for suffered from chronic pain every day of their life. What sort of things have helped others get back to normal? I have adjusted my diet, take my meds, ice to bring down any swelling. I used to run 8 miles daily, and I'd love to run again..I'd also love to have kids one day but thinking about everything I've gone through is all that possible again?
Sorry for the long post, but I figured I'd share my story and I'd love to hear from others!