Re: Having a flare up!! Help!!
I've had RSD for 7 years in my left leg & have had my fair share of flare ups. I'm having one right now too, so just know that first off, you are not alone. Second, my fiance had to take me to the ER 2 weeks ago because the pain was so bad & like every other time, they hadn't heard of RSD before. I've gotten in the habit of taking RSD pamphlets that I ordered to new doctor's that I go to so they are aware of what it is or to the hospital when I have to go so they know what it is. As frustrating as it is, I try not to get mad at them because at one point, I didn't know what it was either. Its because that what we have is not well-known and is a more rare diagnosis. My suggestion to prepare yourself if you have to go to the ER again, print out something short & sweet on RSD that will give anyone treating you the gist of what it is. Mayo Clinic has information on their website .
As far as whether or not if its normal if you are in bed from a flare up....ABSOLUTELY! I have had flare ups that have lasted anywhere from a week or two to months on end. And I was in bed the whole time, only getting up to use the bathroom but I was assisted in order to walk to get there. The best thing you can do for yourself during that time is to stay off your leg as much as possible. When you are walking around on it & trying to do everything you normally would when you are not having a flare up, you are doing more damage than good.
I know its not easy & sometimes, it can feel really lonely because no one can truly understand the pain we go through. Hang in there!
Last edited by Administrator; 12-31-2012 at 01:39 PM.