I just joined this board and I'm not sure if you've found a doctor yet or not. I live in North Carolina, got tarsal tunnel in 2010, had surgery and then got RSD, also in my foot/ankle. I'm 27 and never actually injured myself. Anyway I've been to a TON of doctors here and finally found some really great ones. I'm not better yet, but that's me, my doctors are amazing and are constantly trying new and awesome things. One in particular refers to things that happens to me as "US". He is MED VIP and only takes a few patients a year.He is also just an MD, but he's my advocate, liaison, and translator. He has eased so much of my stress. He usually offers ideas and then calls the other doctor first to see if I should even go. Either way I would love to help you. You can message me for the list of people I like here (Eastern/central NC) and hopefully I can help you out. If she's found someone then I'm glad she has and I hope she's doing well.
Originally Posted by trophysrus1
My 12-year-old daughter was diagnosed last year with RSD in her foot. We live in southwestern Virginia and I can't find a doctor who deals with this. Her Pediatric Orthopedist diagnosed her last winter. We are looking for an MD and someone to help her deal with the mental aspects of this (lots who can deal with the mental aspects if she were an adult, no one will take on a child).