what is this? what does it mean? - Reflex Sympathetic Dystrophy Message Board

apriltones · 12-05-2004, 04:28 PM

hi all, i normally post on fibro board and found this by mistake. my symptoms started after my little boy was born 14 months ago. Doctors dont know what it is and kept fobbing me off, im waiting mri and i passed the neuro exam. My symptoms are; tingling in alot of places,private regions too, burning sensations,kreepy crawly sensations,itchy, migraines,muscle and joint aches,weight hard to shift,migraines,twitches,jolts,stabbing pains, list goes on!!! does this sound like rsd? thanks, aprilxx im just trying to find out whats wrong with me, any insight will help

despnhurtn · 12-05-2004, 06:12 PM

Hi April - I'm Beth. Welcome to board. RSD usually sets in one place and then can mirror or spread. Will need more info before we can help. Did your symptoms show up first in one spot? Was it right after giving birth? What kind of pain treatment did you have for birth? What kind of meds have you taken since symptoms have displayed? There are medicine reactions that can show like yours and can take a long time to go away. Have you had any antibiotics since pregnancy and birth? Think hard and give us a little more history and you may need to see a neurologist no matter what your history is. What kind of doctors have you seen? Come back on and share there is a great group here who will respond with help....Beth

apriltones · 12-07-2004, 12:08 PM

hi beth, lovely message. my symptoms came on more or less straight away after birth, at first panic attacks again and shooting pains in legs. I had alot of itchyness down below and tingling which i still have. they dont knowwhat it is, it has just spread from there with more symptoms. ive seen a neuro and passed exam, waiting for mri. there is long waits for things like this in england. I had no pain relief in labour, found out i had group b strep in vaginAL swab, this suppose to have no symptoms. i had several anti biotics for it which dont work any way as it dont shift this, any thing else you want to ask just say, thanks

RSDtrinity · 12-07-2004, 12:47 PM

Generallly RSD comes from a nerve injury, although it can just happen without remembering any specific injury. RSD is most associated with burning or bone crushing sensations and generally affects the extremities. Of course these are just generalizations because RSD is not a well known disease, but i'm trying to get it down to the most nitty gritty I can make it for you. It could be possible that you damaged nerves during childbirth, but i'm no doctor either. The other major symptom which helps most of us RSD'ers get diagnosed is the color changes. Our skin changes to a dark blue almost black looking color when dependant. If you really think that you might possibly have RSD i'd suggest doing a search (since we can't post links here) online and take a look at some of the more informative websites out there. You'll get tons of information and that way you can see if your symptoms most closely associate with RSD or not. Definately come back and let us know what you find out though, i'm definately wondering... - Jessica

apriltones · 12-07-2004, 03:07 PM

ah thanks jessica, your all so lovely on this board!! i was wondering if it was to do with nerve injury too, i had a epsiotomy. does rsd start in one place and you then get symptoms all over? cheers, love aprilx