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Reflex Sympathetic Dystrophy Message Board
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Old 08-05-2005, 11:36 AM   #1
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chick58

Hi chick58
I was just was wondering how you were doing, I didn't forget you, I posted a reply on the original posting you first responded to. Let me know what's going on , okay. I hope you are having a wonderful and pain free day, we deserve them!!


I am glad to have found people so caring and to have found you it is so frustrating when you are first diagnosed with RSD because you feel in the dark about everything from your treatment to symptoms and then some. I was just diagnosed alittle over a month ago and I still feel in the dark about my future prognosis and what to expect. I think everyone has different experiences but still alot of things in common( ex- a certain pain med or treatment works for one person not the other, or the limb that is afflicted, or how badly, but we all share the same fears as to what life will hold for us now, we can comprehend each others pain though some have worse pain or not as bad, but we learn and share together.) One big family.
Do you have any children?? I have four, ages 2-11. I have my hands full, but I enjoy being a mom and sometimes I feel so cheated because I can't enjoy certain things that go along with being a mom, but I just improvise and we get through another day, I am thankful I am still able to walk and have my mobility, if I had to be on bedrest LIFE would be 10x more difficult, but again you learn to somehow make do, the wonders of the human spirit!!!!

We'll have to go for now!!!
LISA

 
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Old 09-18-2005, 12:39 AM   #2
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Re: chick58

rsdangiogram&angioplasty hi lisa, so happy to hear that your family is doing fine. would like to know how you are doing??i haven't forgotten you i have been soooo busy going to drs.and i am still having my blocks ,i think i have had at least 50 plus by now ,i lost count when i was at 40 .so much has been going on with me i can't keep up with myself i picked the kettle up not thinkung with my bad arm and dropped it and burned my right leg but it has healed now then i had to have tests done on my right leg becauase i have pad inthe lower extremities,for which i had a bypass surgery .well the tests came back and my right leg is sooooo blocked again they can't even see the plastic tubing from the first bypas and there is another blockage inthe same area in the main arterey . so i am schedualed for sept 26 to have angio&angioplasty done at the same time . my dr will be giving me a block just before the procedure ,hoping to prevent further spreading o f rsd about a month ago i was told that rsd had spread to my back also had my eyes checked and i have drye eye syndrome for which i use drops three times daily ,they have been helping with the burning and itching,also i have dry mouth so bad ,and that is constant day& night . one more thing to add to my rsd hell is that i have been having hearing problems in my right ear so i will be going to have my ear checked too, is there ever going to be a light at the end of this rsd tunnel??? most days now i do not even want to get out of my recliner for which i am still having to sleep in .after the sept 26 i go back to the surgeon to set a date for a double bypass the list never seems to end and i feel like i am at the end of my rope ,just can't take anymoreiam very scared ,depressed ,and totally frustrated whith this whole rsd hell i sincerely hope that you are doing much better than i am and i will be praying for you sandy

 
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