It appears you have not yet registered with our community. To register please click here...


 Home Message Boards Videos Join for Free User Blogs Board Index
Search
 
Forgot your username or password?


Reflex Sympathetic Dystrophy Message Board
Post New Thread   Closed Thread
Share
 
 
LinkBack Thread Tools Search this Thread Display Modes
Old 09-09-2008, 08:38 AM   #1
Junior Member
(female)
 
Join Date: Sep 2008
Posts: 10
Hugs: 0
Hugged 0 Times in 0 Posts
Thanks: 0
Thanked 0 Times in 0 Posts
nasta25 HB User
rsd doctors

rsd doctors

 
Sponsors Lightbulb
   
Old 10-06-2008, 04:37 PM   #2
Member
(female)
 
Join Date: Aug 2006
Posts: 93
Hugs: 0
Hugged 0 Times in 0 Posts
Thanks: 0
Thanked 0 Times in 0 Posts
martra1025 HB User
Re: rsd doctors

Hi nasta,
The best doctor I know of is in Philadelphia...Dr. Robert J. Schwartzman at Drexel School of Medicine. The wait time is about 1 1/2 years to get in. We just saw him today for the first time. When we made the appt. We couldn't believe how far off it was...16 months. We weren't sure we could wait. It was worth the wait.

 
Old 10-07-2008, 12:42 AM   #3
Senior Member
(female)
 
Join Date: Apr 2008
Posts: 207
Hugs: 2
Hugged 3 Times in 3 Posts
Thanks: 0
Thanked 1 Time in 1 Post
RoseinSanDiego HB User
Re: rsd doctors

Hello,
Were you needing doctors in the Baltimore area? Wasn't sure, because all you wrote was "rsd doctors".
I live in San Diego County so not much help, but hopefully you'll find somebody here on the boards from your area that can help you. I would think John Hopkins would be a great place for you to search for an RSD doctor. I read on here all the time about Dr Swartzman, but who can wait a year and a half if they're new with this disease? I've also read many times on here that doctors haven't heard about RSD. In my experience, I haven't encountered that. My experience is that all the doctors I know or see, and my daughters doctors also know about RSD. Even my other daughter's pediatrician knows about it and knows it's usually treated with Lyrica or Neurontin. Maybe it's because San Diego is so large and we've got UCSD here and stuff. I feel badly for anyone who gets jerked around because it's so vital that we're treated.
Take care, and I wish you the best of luck in your search -
Deb

 
Old 10-07-2008, 10:51 AM   #4
Junior Member
(female)
 
Join Date: Sep 2008
Posts: 10
Hugs: 0
Hugged 0 Times in 0 Posts
Thanks: 0
Thanked 0 Times in 0 Posts
nasta25 HB User
Re: rsd doctors

Thank you for you're input.

I still have not found a doctor that does specialize in RSD. The main problem I have encountered is docrtor's will say something along the lines that they have sucsessfully treated RSD patients but when it acually comes down to it, they mean they have gotten the pain under control - for now. One did a partial EMG test (partial meaning he stuck me the electricaly charged needle only about 1/4 of the times he was supposed to in order to get the correct nerve diagnosis) and when it came back normal told me I was perfectly healthy, the same doctore also gave me a sympathetic nerve block but for reasons unknown, it made the pain much worse(?). I did some research on my own and I do not remember the web site but it did say the in some RSD patients, a phenonenon called Neronal Plasticity can occur if you have had the disease disease for too long (it happens because even though the main nerve causing the pain has been placated, the nerves surrounding it remember the pain and take over, hence increasing the pain). Well anyway despite the fact that I had every symptom of the disease (splotchyness/redness, weird skin, gross nails, sensativity to heat/cold, excessive sweating and the giveaway - a 3 degree (lower) temp. diff. form the other leg), he sent me back to my Ortho surgeon, telling me that it must be something else who in turn told me he had no doubt I had it.

After that I saw three more doctors who all agreed it WAS RSD but where of no help as the only thing they are able or should I say willing to do is medicate or incorporate a spinal cord stimulator (which is not an option for me right now as I have 6 bulging discs and a 15 mm lesion in my middle ear, both of which still have to be addressed).

I decided to research before actually going to the new doctor. You would not believe what some of them said! Some would not take me in at all - big surprise, one told me he had treated 6 RSD patients and only one did not fully recover (I read on the RSD hope web site that this is a sign that the doctor has no idea what he is up against).

I am going to at least call Dr. Schwartzman and get on the waiting list, what harm could it do??

Can you tell me if he takes insurance? I know some RSD specialist do not...

And do you have his number?

 
Old 10-12-2008, 08:46 AM   #5
Member
(female)
 
Join Date: Aug 2006
Posts: 93
Hugs: 0
Hugged 0 Times in 0 Posts
Thanks: 0
Thanked 0 Times in 0 Posts
martra1025 HB User
Re: rsd doctors

Nasta,
I think you should call Schwartzman and get on the list. We were very disappointed when we made the appt. and it was so far away. We couldn't believe they would make an RSD patient wait so long. But, we survived and it was worth it. Nothing to lose by scheduling the appt. The year and a half is going to come either way and you can still look and research while waiting. Good luck.

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Don't bother with Doctors neddyflanders Acid Reflux / GERD 11 03-13-2010 08:24 PM
Over 20 doctors were wrong, I don't have Fibro. Katexlove Fibromyalgia 3 10-04-2008 08:05 PM
Diuretics and Back Pain Machaon High & Low Blood Pressure 14 03-29-2007 05:37 AM
are doctors being fair about pain meds? nwhat Pain Management 33 03-21-2006 03:55 AM
Doctors: Number one reason why Lyme patients get so sick! dealer1111 Lyme Disease 30 02-19-2006 08:54 AM
Strange lump in throat feeling.......Doctors against Armour & Free T-3 goldn Thyroid Disorders 4 07-03-2004 12:13 PM
ADVICE PLEASE: I have been unfairly struck offmy doctors list for asking for MsCeeKay Women's Health 8 04-10-2004 07:29 PM
Terrified of doctors and specialists!! Hi_its_Joe Open to All Other Health Topics 2 11-23-2003 10:23 PM
DOCTORS - a little harsh on them?? MichaelV Bone Disorders 34 01-04-2003 04:38 PM
Doctors are not pshyologists!!!!! Blue4U2 Open to All Other Health Topics 14 10-14-2002 06:49 AM




Bookmarks

Thread Tools Search this Thread
Search this Thread:

Advanced Search
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off











Message Boards
  • Open to All Other Health Topics
  • It's Life - Off Topic Discussions
  • Natural Disaster Sympathies and Support
  • Health News
  • HealthBoards Testimonials
  • Suggestions for New Boards
  • Registration/Membership/Site Problems
  • Health Issues
  • General Health
  • Abuse Support
  • Acid Reflux / GERD
  • Acne
  • Share Your Acne Story
  • Acne Tips
  • Acute Respiratory Distress Syndrome (ARDS)
  • ADD / ADHD
  • Addiction & Recovery
  • Addison's Disease
  • Aging Issues
  • Allergies
  • Alternative Medicine
  • Alzheimer's Disease & Dementia
  • Amputation / Prosthetic
  • Amyotrophic Lateral Sclerosis (ALS)
  • Anemia
  • Aneurysm
  • Anger Management
  • Angina
  • Anxiety
  • Share Your Anxiety Story
  • Anxiety Tips
  • Arthritis
  • Asperger's Syndrome
  • Asthma
  • Autism Spectrum
  • Autoimmune Disorders
  • Back Problems
  • Beauty & Cosmetics
  • Bell's Palsy
  • Bipolar Disorder
  • Birth Control
  • Blood and Blood Vessel
  • Bone Disorders
  • Bowel Disorders
  • Brain & Head Injury
  • Brain & Nervous System Disorders
  • Brain Tumors
  • Breastfeeding
  • Burns & Injuries
  • Cancer
  • Cancer: Bladder
  • Cancer: Bone
  • Cancer: Brain
  • Cancer: Breast
  • Cancer: Cervical & Ovarian
  • Cancer: Colon
  • Cancer: Esophageal
  • Cancer: Kidney
  • Cancer: Lung
  • Cancer: Oral
  • Cancer: Pancreatic & Liver
  • Cancer: Prostate
  • Cancer: Rectal & Anal
  • Cancer: Skin
  • Cancer: Stomach
  • Cancer: Testicular
  • Cancer: Throat
  • Cancer: Thyroid
  • Cancer: Uterine
  • Candida
  • Caregivers
  • Carpal Tunnel Syndrome
  • Celiac Disease
  • Cerebral Palsy
  • Chemotherapy
  • Children - Special Needs
  • Children's Health
  • Chronic Fatigue
  • Codependency
  • Colds & Flu
  • Swine Flu (H1N1)
  • Cosmetic / Plastic Surgery
  • Costochondritis
  • Crohn's Disease / Ulcerative Colitis
  • Cystic Fibrosis
  • Death & Dying
  • Degenerative Diseases
  • Dental Health
  • Depression
  • Share Your Depression Story
  • Depression Tips
  • Diabetes
  • Hypoglycemia
  • Diet & Nutrition
  • Digestive Disorders
  • Disabilities
  • Divorce & Separation
  • Dizziness / Vertigo
  • Down Syndrome
  • Drug Interactions
  • Dyslexia
  • Dysphagia
  • Ear, Nose & Throat
  • Eating Disorder Recovery
  • Endocrine Disorders
  • Endometriosis
  • Environmental Disorders
  • Epilepsy
  • Epstein Barr Virus (EBV)
  • Exercise & Fitness
  • Eye & Vision
  • Family & Friends of Cancer Patients
  • Family & Friends of the Mentally Ill
  • Family Planning / Adoption
  • Fibromyalgia
  • Foot Problems
  • Gallbladder
  • Genetic Disorders
  • Grief & Loss
  • Hair Loss / Alopecia
  • Hair Problems
  • Headaches & Migraines
  • Health Insurance Issues
  • Healthcare Professionals
  • Healthy Lifestyle
  • Hearing Disorders
  • Heart Disorders
  • Hepatitis
  • Hernia
  • Herpes
  • High & Low Blood Pressure
  • High Cholesterol
  • HIV Prevention
  • HIV/AIDS Living With
  • Hormone Problems
  • Hospice
  • Human Papillomavirus (HPV)
  • Hypochondria
  • Hysterectomy
  • Immune Disorders
  • Incontinence
  • Infant Care (up to 18 months old)
  • Infectious Diseases
  • Infertility
  • Share Your Infertility Story
  • Inner Ear Disorders
  • Interstitial Cystitis (IC)
  • Irritable Bowel Syndrome (IBS)
  • Kidney Disorders
  • Knee & Hip Problems
  • Lasik Eye Surgery
  • Learning Disorders
  • Leukemia
  • Liver & Pancreas Disorders
  • Lung & Respiratory Disorders / COPD
  • Lupus
  • Lyme Disease
  • Share Your Lyme Disease Story
  • Lymphedema
  • Lymphomas
  • Men's Health
  • Menopause
  • Mental Health
  • Mesothelioma
  • Military Health Issues
  • Miscarriage & Still Birth
  • Mononucleosis
  • Multiple Sclerosis
  • Muscular Dystrophy
  • Myositis
  • Nail Problems
  • Neurofibromatosis
  • Neurology
  • Neuromuscular Diseases
  • Neuropathy
  • Nutritional Disorders
  • Obesity
  • Obsessive Compulsive Disorder (OCD)
  • Occupational Health & Safety
  • Orthopedic
  • Osteoporosis
  • Pain Management
  • Chronic Pain
  • Share Your Pain Management Story
  • Panic Disorders
  • Paralysis
  • Parenting Issues
  • Parkinson's Disease
  • Personality Disorder
  • Phobias
  • Pituitary Disease
  • Polio
  • Polycystic Ovary Syndrome (PCOS)
  • Post-Traumatic Stress Disorder (PTSD)
  • Postpartum Depression (PPD)
  • Pregnancy
  • Share Your Pregnancy Story
  • Pregnancy Tips
  • 2010 Mommies
  • 2011 Mommies
  • Pregnancy-Teen
  • Prostatitis
  • Psoriasis
  • Rape / Sexual Abuse
  • Rare Disorders
  • Raynaud's Syndrome
  • Reflex Sympathetic Dystrophy
  • Relationship Health
  • Restless Leg Syndrome
  • Rosacea
  • Sarcoidosis
  • Schizophrenia
  • Scoliosis
  • Self-injury Recovery
  • Senior Health
  • Sexual Dysfunction Treatment
  • Sexual Health - General
  • Sexual Health - Men
  • Sexual Health - Teens
  • Sexual Health - Women
  • Sexually Transmitted Diseases
  • Shingles
  • Shoulder / Rotator Cuff Problems
  • Shyness
  • Sickle Cell Anemia
  • Sinus Problems
  • Sjögren's Syndrome
  • Skin Problems
  • Sleep Disorders
  • Smoking Cessation
  • Speech & Language Disorders
  • Spinal Cord Disorders
  • Stress
  • Stroke
  • Sudden Infant Death Syndrome (SIDS)
  • Teen Health
  • Thyroid Disorders
  • TMJ Disorder -TemporoMandibular Joint
  • Tourette Syndrome
  • Transplants
  • Trigeminal Neuralgia
  • Trying to Conceive (TTC)
  • Urology
  • Vaccination & Immunization
  • Vitamins & Supplements
  • Weight Loss
  • Weight Loss / Surgical
  • West Nile Virus
  • Women's Health



  • TOP THANKED CONTRIBUTORS

    Reflex Sympathetic Dystrophy

    painman2009 (51), krisj5kids (34), Kevscar (30), kellyevans40 (28), mellow (11), sswallow (10), knave (9), RSDfree1day (7), FaithMom (6), destinyevans (5)

    Site Wide Totals

    thanbey (581), janewhite1 (528), BlueSkies14 (511), SpineAZ (484), DGabriel10 (469), mscat40 (424), tetonteri66 (421), jennybyc (404), sammy64 (391), jgrangran (364)

    All times are GMT -7. The time now is 07:13 AM.



    Site owned and operated by HealthBoards.com™
    Copyright and Terms of Use © 1998-2012 HealthBoards.com™ All rights reserved.
    Do not copy or redistribute in any form!


    SEO by vBSEO ©2011, Crawlability, Inc.