Sodium Amyital - Reflex Sympathetic Dystrophy Message Board

scriptor · 06-18-2003, 05:14 PM

Hi guys.

I was just woundering if anyone else out there has had the infusions I have. What they do is you get an IV and then the doctor injects Sodium Amyital into the IV. You usually start at whatever level takes away the pain. I started at I think 350 mg, and you are not even suppossed to go up that high. But now I'm at 500mg. Then when the pain is gone you take this cream that the doctor perscribed and rubit on your legs with gloves on. Then the doctor manipulates your legs. He bascially justs exercises them, twists them around. It's the movement that helps to overstimulate the nerve. Just like the blocks.

The sodium Amyital is weird stuff!!! When he injects it, everything starts to go fuzzy and everything starts to buzz. I have to shut my eyes. When I first started the procedure, which was recomemded by the RSD specialist in BC, I would sometimes fall asleep during the proceedure and I would sleep all day long afterwards, as well as all night long.

The cream is composed of: Doxazosin 0.2% , Diclofenac 10% , Bupivicaine 0.5% in Diffusimax.

It's a very interesting cream. But it works to take the pain away. The first time I used it, it took the pain away for a little while. See it has a numbing agent in it.

Anyway I'm rambling on too much and I have to go. Please take my words into careful consideration.

ByeBye

Lacei · 06-19-2003, 02:28 AM

VERY IN TER ES TING!!!!!!! Im gonna keep that one in mind.... I'm so new to this, I didn't know that overstimulation was a goal. My doctor told me that the thought of me ever running a marathon again was completley out of the question (as if....) and even excersize needs to be limited to water excersize. I Know he wants no impact whatsoever on the joints, but I guess I assumed over-stimulation would also have the potential for causing a flare up... hmmmm INTERESTING..

Soxy · 06-19-2003, 12:13 PM

That is interesting. My docs want me to continue to "live my life" but of course I can't. I have RSD in my foot. In PT they stay away from it because of the fear of making it worse. It's treated very gently. I do what has become my daily routine but have had to give up alot - like walking for exercise because I now limp. I can't imagine my foot being massaged or handled in any way! Ouch! RSD is so strange. What works for one doesn't work for another. Baffling!!!
Soxy

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Believe in Miracles!!

dayton · 06-19-2003, 01:41 PM

I'm sitting here at work and my legs are very weak. I mean when I walk I feel like I'm going to fall. I'm up down, up down, all day long at work but when I go home I just crash. I am EXHAUSTED, I mean I don't even want to get off the couch. Come to think of it, I don't even make it to the couch! Some nights, I wash my hair, put on my old robe and just go to bed at 7:00. The neurotin and elavil put me right down. I've heard of rsd causing fatigue but no one has specifically mentioned their legs are weak. Cramps and tingling yep got that too, but the weakness is horrible..... I think the neurotin is helping cause I haven't had the tingly fingers and wrists anymore. Rats, tho, the left foot top is getting squirrely. I hope it's just sympathy pains and not spreading. I have a block on the 23rd. Hubby has been complaining ever since he saw the bills about how many more of these are you going to have. Seems like it never stops.............

dayton · 06-19-2003, 01:42 PM

Well you can tell how tired I am!!! Thought I was making a new post and this ended up a reply!! Sorry guys.......