~Panthrvamp~ - Reflex Sympathetic Dystrophy Message Board

cattys · 06-24-2003, 09:51 AM

Hi panthrvamp,

I am sorry to hear that your scs shifted. I also have a scs for RSD. I am pretty much down also to no meds just topamax and zanaflex. The scs has been a god send so far.

I hope that you can get yours repaired so you can get back to getting some pain relief.

Take care
Cattys

panthrvamp · 06-24-2003, 10:23 AM

Thanks, cattys, so do I! I couodnt tollerate the topamax, so were usine Zonegran which is great. none of the side effects like had with the neurontin.How long have you had your stimulator?

Deb

------------------
Once upon a Midnight Dreary,
For the ravin' stole my heart,
Nevermore to belong to another.
For the Ravin shall always be a part of me,
But I am the Ravins' Nevermore.

cattys · 06-24-2003, 04:52 PM

Hi deb,

I had a scs last year but it got infected and had to come out, so I got it again this past March.

What side effects where you having from the topamax? I have not had bad ones yet. I just started it. What dose where you on? I am just on 25 mg till I go back to dr. next week.

Take care.
Cattys

panthrvamp · 06-25-2003, 08:59 AM

I was on the 25mg also, but I was always nausious and dizzy from the get go. I could not function at all, and well, trying to work full time is hard enough, but add that to it, I could not even read the computer screen my vision was so blurry. Apparently from what my Dr said the Zonegran is still a pretty new one to use, but he was really excited about it when he first told me and we tried it. I started it at 100 mg a day ( think that is the lowest it comes in) and am up to 200mg twice a day. Having NO side effects at all and its really cut down the burning sensation. I hope the Topamax works for you Cathy, if not mention this one, honest it really did work for me.
we had talked about using the Pump but, I started to reject the morphine which is why went to the patch. ON one of the other groups I am in someone told me to if you spray a inhaler on the spot before putting the adhesive on, it won't irritate. I have a bad alergy to some tapes and that was our main concern when started it. Have't tried the inhailer thing yet, but it will if starts eating my skin. When did my implant and went to pull off the tape, I had blistered so bad took like 3 layers off, that hurt almost more than anything!
Did you, or anyone that has used the duragesic find that certain areas of your skin were more sensatve than others to the tape? I could not use it on my back or my stomac, tore up my skin so just keep switching upper arms and areas.

Hope all have a pain free day, or as much as possible!
Ment to post on different page, sorry! Shows how my brain is working today! LOL
Blessed Be
Deb

------------------
Once upon a Midnight Dreary,
For the ravin' stole my heart,
Nevermore to belong to another.
For the Ravin shall always be a part of me,
But I am the Ravins' Nevermore.

[This message has been edited by panthrvamp (edited 06-25-2003).]