Hello -I am new to this site - Reflex Sympathetic Dystrophy Message Board

Iam2boysMom · 08-03-2003, 08:36 PM

I am new to this site.

My short story is I have had RSD since I broke my toe playing soccer.

The pain level went down drastically for several years, I had to toe fusion surgerys on my broken toe, after this both my feet started hurting and were numb, then 2 years later diagnosed with Diabeties.

Had a hard time convincing Drs that it was not just neropathy but I thought it was RSD also.

Thats my story. I am just searching for help and suggestions on others treatment options.

Patty

zim · 08-03-2003, 08:50 PM

Patty-
Welcome to this site. You will find it very helpful if you have questions or just need support. This is a good place to talk with others who understand what it is like to live with rsd/crps.
I was diagnosed in april by my podiatrist and then sent to a pain managment doctor who confermed it. I had sprained my ankel/foot in march at work. The first doc I was sent to was reaaly bad. He kept saying nothing was really wrong and it shouldn't be hurting this bad or you must have a low pain tolerance. That was when I switched docs.
You need to make sure you are dealing with a doc who understands rsd/crps. You should try to see a pain managment doc. The earlier you get treatment the betterr off you will be.
I was a little confused by your post, did they say you do have rsd or do you think it's rsd? Well' either way make sure your doc is someone you like.
Good luck,
Zim

sharon1030 · 08-03-2003, 09:15 PM

Hi Patty and welcome,

I've had RSD for 17 years and I also have diabetes. Do you have type I or type II diabetes? I've had
type I for 20 years-since I was 12. I saw your other post on the Pain Management board about the stimulator. I don't have one, but I had a trial and it didn't work for me. I now have a morphine pump. There are a couple people here that have a stimulator. I'm sure they'll get back to you.

It's nice to meet you. I've never met anyone who's had diabetes and RSD. I know what you mean about the neuropathy. I've had two unnecessary EMGs to rule out neuropathy. Good luck and I'll talk to you soon.

Sharon

Soxy · 08-04-2003, 10:25 AM

Hi Patty!

Welcome to the board. I agree with the others that having a good supportive doc is the key. I think a pain doc is a good start if you don't have one already. I have RSD in my right foot now. Last year it was in my left foot. Docs think it began in my lower back. I've had a major flare the last several weeks. I hope your pain is tolerable. Look forward to "talking to you". Take care.
Soxy

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There is always hope....

cattys · 08-04-2003, 01:00 PM

Welcome patty,

Have you ever recieced any sympathetic blocks?

Did the dr. agree with you when you said you think it is RSD?

Have you ever been to pain managment.

Sorry for all the questions. maybe we can help you better if we knew these things.

I look forward to you hanging around on this forum. We will be here for you anytime you need us.

cattys